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Table 2 RFAC conditions for success

From: The Research Family Advisory Committee: the patient and family view of implementing a research-focused patient engagement strategy

Factors that influence engagement Conditions for success
The patient
Individual factors that can affect patients’ motivation, willingness, and ability to engage within and across different levels
1. Patients’ knowledge, attitudes, and beliefs
2. Experience with the health care system
3. Self-efficacy
4. Functional capacity
Ensure a diverse mixture of membership considering background, experiences, education, culture, language, and expertise
Schedule meetings in the evenings in an accessible location to accommodate members who have commitments during the day
Offer a variety of means to attend the meeting (e.g. in-person, online virtual, or telephone)
Provide various means of contributing to the discussion (e.g. online chats, email, post-meeting collaborative forums, verbal debriefs)
Ensure volunteer members are compensated for any costs for participation (e.g. parking, public transit costs)
Acknowledge and value diverse backgrounds, perspectives, and ideas by openly discussing and debating input. Do not dismiss ideas without providing your reason and rationale
The Organization
An organization’s characteristics influence patients’ ability to engage in it
 Staff practices
 Organizational policies or practices
Devote appropriate resources to support the group to minimize the amount of time members must spend on RFAC duties outside of meeting times. Examples of support tasks include:
 Identifying and preparing presenters
 Providing facilitation notes to chairs
 Prioritizing pre-reading material
 Collecting feedback from presenters
Promote an environment of continuous improvement, including regularly reflecting on what is working well and what needs re-thinking. Address areas for improvement with actionable ideas
Ensure staff and volunteers are equally informed and updated on organizational changes or updates
Promote a culture of continuous learning by providing opportunities for training and development of knowledge and skills related to research, communication. and co-learning
Society
Patients and organizations operate within a broader social and political environment and are influenced by social norms; regulations; and national, provincial, and local policies
Promote a culture of openly addressing larger cultural issues (e.g. Isolation from COVID-19 restrictions) and how they may affect participation in RFAC duties
Ensure appropriate resources are engaged to adapt quickly to larger societal or organizational impacts