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Table 3 Trial and organisational barriers and enablers to consumer involvement

From: A snapshot of consumer engagement in clinical trials in Australia: results of a national survey of clinical trial networks and research organisations

Barriers

Enablers

Lack of resources and training for researchers and consumers

Provision of resources and training, eg toolkits for consumer involvement

Lack of funding

Systematically addressing the shortage of resources

Lack of understanding on how to involve consumers at an organisational and operational level

Factoring consumer involvement related costs into research budgets

Perceived lack of evidence that consumer involvement adds value to clinical trials

Early involvement of consumers

 

Engagement of more than one consumer representative

 

Support of consumer champions at senior management level

 

External drivers, e.g. funder requirement for consumer involvement