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Table 3 Key successes, challenges, and next steps

From: Facilitating and supporting the engagement of patients, families and caregivers in research: the “Ottawa model” for patient engagement in research



Next steps

• Strategic alignment and support from senior management at TOH and OHRI

• Coordinated resources, training, organizational commitment, and staff support for patient engagement in research

• Patient partners engaged in a spectrum of basic to clinical research

• Limited resources for staff to match, educate and support researchers and patient partners, and for ongoing information technology and evaluation

• Equitable, harmonized compensation

• Understand current patient partner demographics and how representation of the TOH patient community can be improved

• Equip researchers to work with diverse groups in culturally appropriate ways

• Evaluate patient and researcher experiences