Skip to main content

Table 3 Key successes, challenges, and next steps

From: Facilitating and supporting the engagement of patients, families and caregivers in research: the “Ottawa model” for patient engagement in research

Successes Challenges Next steps
• Strategic alignment and support from senior management at TOH and OHRI
• Coordinated resources, training, organizational commitment, and staff support for patient engagement in research
• Patient partners engaged in a spectrum of basic to clinical research
• Limited resources for staff to match, educate and support researchers and patient partners, and for ongoing information technology and evaluation
• Equitable, harmonized compensation
• Understand current patient partner demographics and how representation of the TOH patient community can be improved
• Equip researchers to work with diverse groups in culturally appropriate ways
• Evaluate patient and researcher experiences