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Table 3 Proposed charting form

From: Protocol for a scoping review to map patient engagement in scoping reviews

Category

Variable

Publication characteristics

Title

 

Year of publication

 

Journal (or source if unpublished)

 

Published (yes/no)

Author characteristics

Surnames

 

Corresponding author contact information

 

Countries

 

Discipline; point of view; “lens”

Study characteristics

Health topic

 

Design

 

Primary outcome(s)

 

Outcome measures

 

Type of health research (e.g., basic science, clinical, epidemiology)

 

Limitations/risk of bias

Stakeholder (i.e., patient or caregiver) characteristics

Who was engaged in the scoping review (patients, caregivers, both, other)?

 

Total number of stakeholders engaged

 

What perspectives did the stakeholders represent?

 

Average stakeholder age

 

Stakeholder ethnicity/race

 

Stakeholder gender

 

Describe any other information provided about the stakeholders that was unrelated to their identity as a patient or caregiver.

 

During which Arksey and O’Malley scoping review stages were stakeholders engaged (i.e., 1–6, N/A, unclear)?

 

How were they stakeholders engaged (method of engagement)?

Consultation/engagement characteristics

What level along Manafo et al.’s [10] revised engagement spectrum best describes the engagement approach taken and why? Please indicate whether this was your perception vs. stated by the study authors.

 

What was the established purpose of engaging stakeholders?

 

How did researchers keep track of stakeholder contributions (e.g., notes)?

 

How were stakeholder contributions incorporated and/or analyzed (e.g., thematic analysis, revision of preliminary framework)?

 

How did stakeholder contributions influence/impact the research and how was this measured?

 

Describe any strengths and limitations mentioned relevant to the engagement approach or process

 

What challenges to engagement were reported (if any)?

 

Which patient engagement reporting guideline was used, if any (e.g., GRIPP-2)?

 

Were stakeholders compensated (and if so, how)?

 

Were stakeholders co-authors of the review?

 

Please list any other information that you feel is relevant to note about this study’s engagement approach.