Table 6 Highlights: the next steps to further improve AYA involvement
Highlights | Explanation |
|---|---|
1. Create awareness | Researchers should be aware of the added value of collaborating with AYAs in multiple phases and/or levels of involvement during their research projects |
2. Use tools | The adjusted Involvement Matrix is a valuable tool to plan, structure and discuss patient involvement |
3. Provide training or support | Additional training or support should be available for researchers as well as AYAs to make valuable participation plans and/or learn skills which are helpful in AYA-researcher collaborations |
4. Make structural changes | Structural changes are needed in the organization of research projects to overcome obstacles for collaboration already known from literature |