Table 1 Engagement details
Year | Stakeholder | Clinical partners | Organizations |
|---|---|---|---|
2016 | Identified clinic sites, primary and secondary outcomes, and outcome measures Logo and Intervention development Review Informed Consent Determined Interactive voice response content | Letter of support and FFS Agreements obtained from Drayer Physical Therapy, Montgomery East Physical Therapy, Gulf Coast Therapy, Therapy Achievements, Southeast Alabama Medical Center, Tanner Center, and Methodist Rehabilitation Center Clinics worked to identify recruitment strategies, transportation, internet services storage of equipment and files specific to each clinic site and community served | Letters of Support- MS Coalition: Consortium of MS Centers (CMSC), National MS Society (NMSS), Multiple Sclerosis Foundation (MSF), MS Association of America (MSAA), and MS Views and News (MSV&N) |
2017 | Determined articles for tablet app, and tablet app videos format Reviewed and modified MOP and study brochure IVR call frequency. length and voice determined Added Tennessee stakeholder and clinics to the study | Six Drayer Physical therapy clinic sites added in Tennessee and Encore Rehabilitation Pilot testing at Montgomery East Physical Therapy and Tanner Center Best communication with Clinical Research Coordinator established for each clinician through Box, email, and/or phone Communication with other coordinators through Box | Recruitment: NMSS, MSF, MSAA, MSV&N, North American Registry of MS (NARCOMS) and iConquerMS Intervention, Training Manual and Outcome measures: CMSC Abstract presentations at American Congress on Rehabilitation Medicine |
2018 | Pilot testing with stakeholders for testing protocols, IVR, and tablet app Established timeframe for screening to testing and for any pause in intervention Designed postcard for retention and survey for participants and therapists | Added River City Rehabilitation and North Sunflower Medical Center: training and testing completed Clinicians continue to recruit for the study through attendance at events and handing out brochures at the clinics Timing of intervention and testing adjusted based on feedback Protocols designed to improve communication, equipment and gift card inventory for each clinic site | Neurology practices in Alabama, Mississippi and Tennessee through meetings and providing study information to patients NMSS Walk Events and self-help group meetings MSAA and MSV&N speaking opportunities and booths at events |
2019 | Revamped IVR to improve quality and lessen call length Established Lost to contact protocol Second postcard designed for retention Identification of areas for recruitment: events, letters to physicians, self-help group meetings | Clinicians assisting with initial scheduling, lost to contact and withdraw protocol Equipment and gift card inventory return coordinated for clinics finished with the study for redistribution at other clinics Clinicians assisting obtaining missing data in collaboration with the Clinical Research Coordinator | Recruitment continued through NMSS and MSV&N events and meetings Abstracts presented at European Committee for Treatment and Research in MS (ECTRIMS) and presentation at PCORI Annual Meeting on Engagement Article in Momentum NMSS magazine |
2020 | Email developed to update therapists on study progress for encouragement Dissemination ideas discussed: publications, presentations at meetings, participant/caregiver events Feedback provided regarding change of study to all Tele platform | Consent for therapist survey and interview sent to 42 clinicians 14 surveys completed 16 therapists completing training for Tele Assessment and 6 therapists participating in remote DirectCAM Inter-Rater reliability performed with therapists at the Tanner Center | Abstracts presented at CMSC and American Academy of Neurology (AAN) Presentation scheduled at Institute for Patient- Family Centered Care (IPFCC) on engagement ACRM provided information on Tele rehabilitation during COVID-19 via virtual meetings |