Table 1 Stakeholder groups involved in the construction of the catalyst film
Stakeholders | Definition | Role |
|---|---|---|
Patient and Consumer Advisors | Advisors with previous participation in Health Experiences Research Network (HERN) activities who bring subject matter, lived, and/or process experience to a project | As research partners, apply experience and training to center patient and family experiences and help the team “walk the talk” of co-design |
Patient Experience Ambassadors | Research participants trained to disseminate health experiences research pertinent to their own health condition. They combine their own personalized lived experiences with knowledge of experiences of others who participated in the HERN study | Contributing at the “engage” level of PPI, shared insights on ideal content for catalyst films, and how catalyst films should be used. Contributed interviews, of which excerpts were used in final films |
Clinicians | Clinicians offering their professional lens on current transformation in health care services regarding mental health, and the realities and constraints facing quality improvement efforts | Represent clinicians’ priorities and concerns and help the project team seek input from other clinicians (via focus groups) to develop catalyst films that will meet the needs of practicing clinicians |
Principal investigators (PIs) | Project leaders with expertise in patient experiences research, quality improvement research, Patient and Public Involvement, and primary and secondary use of HERN materials | Provide oversight, ensure regulatory compliance, develop research protocols and lead research activities, set timelines and agenda for team discussions, ensure completion of final products, and link back to HERN |
Additional Researchers | Researchers with subject matter expertise and unique access to clinicians at partner university | Review literature, contribute to protocol and liaise to, and co-lead, two clinician focus groups in a different geographical location |
Research staff | Staff with variable abilities and assignments to ensure smooth project management and execution | Interview Patient Experience Ambassadors; conduct literature review; cut film clips and assemble drafts for project team review; manage project logistics, budget, and Institutional Review Board (IRB) process |