Table 2 Patient partner interview quotes: personal and professional impact of being a patient partner
From: Evolution of a research team: the patient partner perspective
Personal impact of being a patient partner |
I turned myself into an asthma leader, which I am. A parent asthma leader, and I wanted to just get the word out there. And I worked at my daughters’ schools, and I just did everything possible. […] I want to see the emergency room visits go down. So, everything about this was me, for me. I enjoyed it. I wanted to do it. It was something that meant something to me. And I want to make a difference in the world and in our community with sick people with asthma. –Respondent 4 |
I really appreciated that everybody’s so diverse, in their experience and in their talents. And I think maybe being in the study has brought out talents that they didn’t even know they had. –Respondent 8 |
Being involved [in the study], I'm asking more questions and feeling more confident. So, I've been really grateful to be part of this study because I've actually got a lot of, a lot of knowledge in the right stuff. –Respondent 2 |
Professional impact of being a patient partner |
It has opened up so many opportunities. As a Patient Partner, you get to meet all the researchers, all the doctors. Everybody plays a role in that research. And now we're expanding […], they’re bringing us out into other research, and to the possibility of other people that we can help, besides asthma. –Respondent 7 |
Professionally, it has helped me to have more confidence in myself. In knowing how to communicate with different people who have different titles. And, as [Respondent 16] said, we all have our specialty, and we all have a grain of sand to contribute. The important thing about this group is that I have never felt that, because such a person is not a doctor, that opinion [was] not taken into consideration. –Respondent 15 |
But as a professional, you take away a lot. You're at a different level, definitely. It's like, how can I say it, like a celebrity. Like a celebrity, right? Because at the end, once they complete the research and everything, we have credits. They'll give all of us credit for participating in that research. That means everybody that was part of that research will have some type of acknowledgement. So, we all played, even if it was a small part into that study, we all did that together, as a team. –Respondent 7 |