Patient and public involvement in mobile health-based research for hay fever: a qualitative study of patient and public involvement implementation process

Fujio, Kenta; Inomata, Takenori; Fujisawa, Kumiko; Sung, Jaemyoung; Nakamura, Masahiro; Iwagami, Masao; Muto, Kaori; Ebihara, Nobuyuki; Nakamura, Masahiro; Okano, Mitsuhiro; Akasaki, Yasutsugu; Okumura, Yuichi; Ide, Takuma; Nojiri, Shuko; Nagao, Masashi; Fujimoto, Keiichi; Hirosawa, Kunihiko; Murakami, Akira

doi:10.1186/s40900-022-00382-6

Table 2 The result of interactive evaluation from both the PPI contributors and researchers on the meeting

From: Patient and public involvement in mobile health-based research for hay fever: a qualitative study of patient and public involvement implementation process

PPI contributor, number	1st meeting	2nd meeting	3rd meeting	4th meeting	5th meeting	6th meeting	7th meeting	8th meeting	9th meeting	Total
PPI contributor, number	n = 3	n = 3	n = 3	n = 2	n = 2	n = 3	n = 3	n = 4	n = 3	N = 26
(1) Difficulty of the materials provided in advance by the research team, 0–4, median (IQR)	4 (3.5–4)	4 (4–4)	4 (4–4)	4 (4–4)	4 (4–4)	4 (4–4)	2 (0–4)	4 (3.75–4)	4 (2–4)	4 (4–4)
(2) Number of materials provided in advance by the research team, 0–4, median (IQR)	4 (3.5–4)	4 (4–4)	4 (4–4)	4 (4–4)	4 (4–4)	4 (4–4)	2 (0–4)	3.5 (2.5–4)	0 (0–2)	4 (4–4)
(3) Timing of materials provided in advance by the research team, 0–4, median (IQR)	4 (3.5–4)	4 (4–4)	4 (4–4)	3.5 (3.25–3.75)	3.5 (3.25–3.75)	3 (3–3.5)	1.5 (0–3.25)	3 (2.25–3.25)	0 (0–2)	4 (3–4)
(4) Frequency of use of technical terms and English in explanations, 0–2, median (IQR)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (1.5–2)	1.5 (1–2)	2 (1–2)	2 (2–)
(5) Difficulty of the agenda, 0–3, median (IQR)	3 (3–3)	3 (3–3)	3 (3–3)	3 (3–3)	3 (3–3)	3 (3–3)	3 (3–3)	2.5 (1.5–3)	3 (3–3)	3 (3–3)
(6) Atmosphere for the PPI contributors to speak, 0–2, median (IQR)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)	1 (0–2)	2 (2–2)	2 (2–2)
(7) Clarity of opinions and roles that the research team is seeking from PPI contributors, 0–2, median (IQR)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (1.5–2)	2 (1–2)	2 (2–2)
(8) Opportunities for PPI contributors to speak, 0–2, median (IQR)	2 (2–2)	2 (1–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)
(9) Were you able to say what you wanted to say? 0–2, median (IQR)	2 (2–2)	2 (1.5–2)	2 (1.5–2)	1.5 (1.25–1.75)	2 (2–2)	2 (1–2)	2 (2–2)	1 (1–1.25)	2 (2–2)	2 (1.5–2)
(10) Did the PPI contributors fulfilled the role the research team had asked of them? 0–2, median (IQR)	2 (2–2)	0 (0–1)	0 (0–1)	2 (2–2)	2 (2–2)	2 (1–2)	2 (1.5–2)	0 (0–0.5)	2 (2–2)	2 (0–2)

PPI researcher, number	1st meeting	2nd meeting	3rd meeting	4th meeting	5th meeting	6th meeting	7th meeting	8th meeting	9th meeting	Total
PPI researcher, number	n = 4	n = 8	n = 8	n = 10	n = 8	n = 5	n = 4	n = 7	n = 8	N = 62
(1) Difficulty of the materials provided in advance by the research team, 0–4, median (IQR)	2 (0–4)	4 (4–4)	4 (4–4)	4 (4–4)	4 (4–4)	4 (4–4)	2 (0–4)	4 (4–4)	4 (0–4)	4 (4–4)
(2) Number of materials provided in advance by the research team, 0–4, median (IQR)	2 (0–4)	4 (4–4)	4 (4–4)	4 (4–4)	4 (4–4)	4 (3–4)	2 (0–4)	4 (4–4)	4 (0.75–4)	4 (4–4)
(3) Timing of materials provided in advance by the research team, 0–4, median (IQR)	1.5 (0–3.25)	4 (2.25–4)	4 (3–4)	4 (4–4)	3 (3.75–4)	3 (2–3)	1.5 (0–3.25)	4 (3.75–4)	3.5 (0–4)	4 (3–4)
(4) Frequency of use of technical terms and English in explanations, 0–2, median (IQR)	2 (1.5–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (1.5–2)	2 (2–2)	2 (2–2)	2 (2–2)
(5) Difficulty of the agenda, 0–3, median (IQR)	3 (3–3)	3 (3–3)	3 (3–3)	3 (3–3)	3 (3–3)	3 (3–3)	3 (3–3)	3 (3–3)	3 (3–3)	3 (3–3)
(6) Atmosphere for the PPI contributors to speak, 0–2, median (IQR)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)
(7) Clarity of opinions and roles that the research team is seeking from PPI contributors, 0–2, median (IQR)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)
(8) Opportunities for PPI contributors to speak, 0–2, median (IQR)	2 (2–2)	2 (1.5–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (1–2)	2 (2–2)	2 (2–2)
(9) Were the opinions of the PPI contributors helpful? 0–2, median (IQR)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)
(10) Did the PPI contributors fulfilled the role the research team had asked of them? 0–2, median (IQR)	2 (1.5–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (2–2)	2 (1.5–2)	2 (2–2)	2 (2–2)	2 (2–2)

PPI, patient and public involvement; IQR, interquartile range

Back to article page

ISSN: 2056-7529

Contact us

General enquiries: journalsubmissions@springernature.com

Research Involvement and Engagement

Contact us