Table 4 Groups typically included as PPI representatives by mesothelioma researchers (n = 17)
People included as PPI representatives | Usually | Sometimes | Never | N/A |
|---|---|---|---|---|
Members of mesothelioma or asbestos-related disease charities / support groups | 10 (59%) | 4 (24%) | 3 (17.6%) | 0 |
Patients undergoing curative or palliative treatment | 10 (59%) | 4 (24%) | 2 (11.7) | 1 (6%) |
Informal carers (family or friends) | 10 (59%) | 4 (24%) | 2 (11.7) | 1 (6%) |
Newly diagnosed patients | 9 (53%) | 2 (11.7) | 5 (29%) | 1 (6%) |
Healthcare staff specialising in mesothelioma | 9 (53%) | 5 (29%) | 3 (17.6%) | 0 |
Healthcare staff specialising in lung cancer | 8 (47%) | 5 (29%) | 4 (24%) | 0 |
Bereaved family or friends | 7 (41%) | 3 (17.6%) | 6 (35%) | 1 (6%) |
Healthcare staff specialising in cancer | 7 (41%) | 3 (17.6%) | 7 (41%) | 0 |