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Table 1 Stakeholder categories and their descriptions with examples

From: Key issues for stakeholder engagement in the development of health and healthcare guidelines

Stakeholder category

Description

Examples

Patients, patient caregivers, patient advocates/ organizations

Those with lived experience with the condition of interest or who care for or advocate on behalf of those with lived experience

- Patient with condition on which the guideline is focused

- Caregiver of patient on which the guideline is focused

- Patient group representing patients on which the guideline is focused

Payers of health research

Individuals and organizations that fund research projects, such as government funders, industry funders, foundations

- National health research funding agency

- Philanthropic foundations

Payers / Purchasers of Health Services

Individuals, organizations and entities that pay for health services

- Public health systems

- Private insurers

Peer Reviewed Journals Editors

Those who set journal policy on guidelines and manage the peer review process and editing

- Editor or editor-in-chief of academic journal

Policymakers

Individuals, organizations and entities that craft public or private policy (on health) at any level of government

- Regulators

- Health ministries

Principal Investigators and all members of the of research team

Individuals, organizations, and associations that conduct or advocate health research

- Trialist

- Systematic reviewer

- Study manager

Product makers

Individuals working for companies that manufacture pharmaceuticals, medical devices, medical procedures, health technologies, or for profit educational and behavioral packages

- Pharmaceutical company

- Medical device manufacturer

- Digital / Guided programs available for purchase (e.g. cognitive behavioral therapy programs)

Program managers

Managers/directors who plan, lead, oversee, or deliver any program that provides public health, community services, or clinical care (e.g. budgeting, hiring, staffing, organizing, coordinating, reporting)

- May be health care providers but are not on the front-line delivering health care related to the program of interest, such as a person overseeing an immunization program but not delivering vaccinations

Providers

Persons and their professional associations who provide health care in a professional capacity and allowed by regulatory bodies to provide a health care service

- Psychologists, clinical pharmacists, nurses, physiotherapists, dentists, optometrists, physician assistants, physicians, optometrists, physician assistants and physicians

Public

Individuals in the general population of a defined geographic area excluding patients, caregivers, and health professionals living or working with the condition of interest

- Member of the public with no specific experience with the intervention or condition on which the guideline is focused