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Table 1 Demographic characteristics of people taking part in Vocal PPIE activities, cumulative data December 2018 to March 2022

From: Understanding who is and isn’t involved and engaged in health research: capturing and analysing demographic data to diversify patient and public involvement and engagement

Ethnicity

Vocal public contributors (n = 329)

NIHR public contributors 2018 (n = 631) 2021 (n = 819)

GM Census Data (2011)

%

%

%

White British

178

54.10

No data

79.8

White Irish

5

1.51

1.29

White Gypsy Roma Traveller

0

0

0.67

Other White Background

4

1.21

2.62

White (total)

187

56.84

77 (in 2018) 91.5 (in 2021)

84.38

 Asian or Asian British Indian

16

4.86

No data

1.99

 Asian or Asian British Pakistani

53

16.11

4.85

 Asian or Asian British Bangladeshi

5

1.52

1.27

 Asian Chinese

9

2.74

0.97

 Any other Asian or Asian British Background

3

0.91

1.06

Asian or Asian British (total)

86

18.54

3 (in 2018) 2.2 (in 2021)

10.14

 Black or Black British Caribbean

14

4.25

No data

0.66

 Black or Black British African

10

3.04

1.67

 Any other Black or Black English Background

1

0.30

0.43

Black or Black British (total)

25

7.60

2 (in 2018) 2.9 (in 2021)

2.26

 Mixed White and Black Caribbean

0

0

No data

0.86

 Mixed White and Black African

2

0.61

0.37

 Mixed White and Asian

1

0.30

0.58

 Other Mixed background

3

0.91

0.44

Mixed (total)

6

1.82

2.6 (in 2021)

1.02

 Arab

13

3.95

 

0.56

 Any other ethnic group

5

1.51

 

0.46

 Prefer not to say

7

2.13

  

Sex

    

 Male

120

36.47

40.7 (in 2021)

49.44

 Female

207

62.92

56.7 (in 2021)

50.56

Religion

    

 Christian

101

30.70

No data

61.79

 Buddhist

7

2.13

 

0.36

 Hindu

4

1.22

 

0.88

 Jewish

8

2.43

 

0.93

 Muslim

84

25.53

 

8.68

 Sikh

0

0

 

0.20

 Other religion

23

6.99

 

0.28

 No religion

61

18.54

 

20.77

 Not stated

21

6.38

 

6.12

Sexuality

    

 Heterosexual

287

87.23

86.4 (in 2021)

 

 Gay or Lesbian

6

1.82

1.3 (in 2021)

 

 Bisexual

11

3.34

3.8 (in 2021)

 

 Other

1

0.30

2.3 (in 2021)

 

 Undecided

2

0.61

  

 Not stated

21

6.38

5.9 (in 2021)

 

Do you consider yourself to have a disability?

    

 Yes

87

26.44

‘A lot’: 15.6 ‘A little’: 31.9

 

 No

209

63.53

‘Not at all’: 50.6

 

 Prefer not to say

31

9.42

1.9

 

Are you currently…

    

 Retired

61

18.54

66.48 aged 61 or over (in 2021)

 

 Student

72

21.88

  

 Looking after home or family

23

6.99

  

 Working

111

33.74

  

 Unable to work

21

6.38

  

 Unemployed

14

4.25

 

3.5

 Other

23

6.99

  

What is your highest level of education?

    

 No formal education

8

2.43

  

 Primary education

3

0.91

  

 Secondary education

91

27.66

  

 Higher education

75

22.80

  

 University education

141

42.86

  
  1. Data are compared against national surveys of public contributors carried out by the NIHR in England in 2018 [7] and 2021 [8], and against Census data relating to Greater Manchester from 2011