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Table 5 Summary of research evidence and practice gaps

From: Research evidence and implementation gaps in the engagement of people with lived experience in mental health and substance use research: a scoping review

Review question

Overarching gap

Components

Research evidence gaps

Conceptualize engagement

Define PWLE, standardize terminology, standardize accessible reporting

Develop resources

Best practice guidelines, concrete tools, process descriptions to increase clarity

Evaluate engagement

Impact on research, impact on PWLE, impact on researchers, using various methodologies, conducted with PWLE and considering best practices

Increase diversity

Generate research including representative populations, evaluate impact among diverse PWLE

Implementation gaps

Broader institutional gaps

Sufficient and flexible funding; support of institutions, funders, ethics boards; community collaborations

Day-to-day practice gaps

Clear, early planning; building relationships/rapport; training and mentorship; increased diversity; PWLE at leadership levels

  1. Note. PWLE people with lived experience