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Global qualitative research study Qualitative research study of 54 people with MG or their carers from seven countries | Objective was to extract patient insights and quotes that focused on the ongoing management of people receiving treatment for MG Conducted by external researchers (Branding Science Ltd) on behalf of UCB Pharma using web-assisted telephone or in-home individual interviews |
Literature review 32 peer-reviewed research publications, one newsletter and one book, that present patient-reported outcomes or experiences of living with MG | Researchers searched the peer-reviewed literature, predetermined patient and sociology journals and gray literature Two researchers screened articles for relevance to identify information relating to patient experience or patient-reported outcomes |
International MG patient council meeting report Discussions among six council members living with MG | Detailed discussions among patient council members who lived with MG and were patient advocates in their local communities Extracted insights from the meeting report that were not already captured in the qualitative research study |