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  1. Little is known about patient engagement in the context of large teams or networks. Quantitative data from a larger sample of CHILD-BRIGHT Network members suggest that patient engagement was beneficial and mea...

    Authors: Miriam Gonzalez, Tatiana Ogourtsova, Alix Zerbo, Corinne Lalonde, Amy Spurway, Frank Gavin, Keiko Shikako, Jonathan A. Weiss and Annette Majnemer
    Citation: Research Involvement and Engagement 2023 9:7
  2. The role of patients in cancer research is undergoing a significant evolution as all stakeholders seek to enhance the level of direct patient involvement in the design and development of clinical trials. Howev...

    Authors: Alexandre B. Costa Alencar, Wendy K. D. Selig, Jan Geissler, Tamás Bereczky, Alba Ubide, David Haerry, Richard Stephens and Valerie Behan
    Citation: Research Involvement and Engagement 2023 9:6
  3. In Canada, the Canadian Institutes of Health Research launched the Strategy for Patient-Oriented Research (SPOR) in 2011. The strategy defines ‘patient-oriented research’ as a continuum of research that engage...

    Authors: Colin MacArthur, Rob Van Hoorn, John Lavis, Sharon Straus, Nicola Jones, Lorraine Bayliss, Amanda L. Terry, Susan Law, Charles Victor, Denis Prud’homme, John Riley and Moira Stewart
    Citation: Research Involvement and Engagement 2023 9:5
  4. There is increasing recognition of the importance of patient involvement in research. In recent years, there has also been growing interest in patient partnerships with doctoral studies students. However, it c...

    Authors: Daniel J. Gould, Marion Glanville-Hearst, Samantha Bunzli, Peter F. M. Choong and Michelle M. Dowsey
    Citation: Research Involvement and Engagement 2023 9:4
  5. The chronic complications of ageing with HIV are not well studied in sub-Saharan Africa (SSA) where general healthcare resources are limited. We aimed to collaborate with individuals living with HIV aged ≥ 50 ...

    Authors: Ellisiv Clarke, Grace Anderson-Saria, Aloyce Kisoli, Sarah Urasa, Susan Moloney, Ssenku Safic, Jane Rogathi, Richard Walker, Louise Robinson and Stella-Maria Paddick
    Citation: Research Involvement and Engagement 2023 9:3
  6. Public and patient involvement (PPI) through Young Person’s Advisory Groups (YPAG) enables children to provide guidance and insight into research activities. PPI is an important characteristic of research, how...

    Authors: Anna Delahunt, Sophie Callanan, Sarah Louise Killeen, Ciara M. McDonnell and Fionnuala M. McAuliffe
    Citation: Research Involvement and Engagement 2023 9:2
  7. The National Institute for Health and Care Research (NIHR) Policy Research Unit in Behavioural Science (PRU-BS) was funded to inform government on the application of behavioural science in health and social ca...

    Authors: Dave Green, Val Bryant, Stuart Edwards, Caroline Kemp, Maisie McKenzie, Sudhir Shah and Irene Soulsby
    Citation: Research Involvement and Engagement 2023 9:1
  8. Using the technique of co-production to develop research is considered good practice. Co-production involves the public, practitioners and academics working together as equals throughout a research project. Co...

    Authors: F. V. Hallam-Bowles, P. A. Logan, S. Timmons and K. R. Robinson
    Citation: Research Involvement and Engagement 2022 8:74
  9.  Within the field of patient and public involvement in health service research, there is a growing movement towards not only involving patients in research but engaging them as co-producers of knowledge. We explo...

    Authors: April Hards, Audrey Cameron, Eva Sullivan and Jude Kornelsen
    Citation: Research Involvement and Engagement 2022 8:73
  10. Citizen engagement, or partnering with interested members of the public in health research, is becoming more common. While ongoing assessment of citizen engagement practices is considered important to its succ...

    Authors: Anmol Shahid, Inara N. Lalani, Brianna K. Rosgen, Bonnie G. Sept, Shelly Longmore, Jeanna Parsons Leigh, Henry T. Stelfox and Kirsten M. Fiest
    Citation: Research Involvement and Engagement 2022 8:72
  11. Research codesign is generally defined as end-users’ involvement in planning, implementation, and evaluation of projects. Recently, there has been a growing interest in codesign to maximise research acceptabil...

    Authors: Sara Javanparast, Sally Robinson, Alison Kitson and Joanne Arciuli
    Citation: Research Involvement and Engagement 2022 8:71
  12. Making decisions about your own life is a key aspect of independence, freedom, human rights and social justice. There are disabled people who, without support, would be assessed as incapable of making certain ...

    Authors: Paul Webb, David Falls, Fionnuala Keenan, Barbara Norris, Aine Owens, Gavin Davidson, Rosalie Edge, Berni Kelly, Aisling McLaughlin, Lorna Montgomery, Christine Mulvenna and Rebecca Shea Irvine
    Citation: Research Involvement and Engagement 2022 8:70
  13. Many community-based HIV research studies incorporate principles of greater involvement and meaningful engagement of people living with HIV (GIPA/MEPA) by training people with HIV as peer researchers. Unfortun...

    Authors: Jason M. Lo Hog Tian, James R. Watson, Megan Deyman, Billy Tran, Paul Kerber, Kajiko Nanami, Deborah Norris, Kim Samson, Lynne Cioppa, Michael Murphy, A. Mcgee, Monisola Ajiboye, Lori A. Chambers, Catherine Worthington and Sean B. Rourke
    Citation: Research Involvement and Engagement 2022 8:69
  14. Rapid qualitative studies conducted with patient and public involvement can help promote policy-relevant and efficient research. There is a need to understand the experiences of researchers, patients, and memb...

    Authors: Katie Gilchrist, Syka Iqbal and Cecilia Vindrola-Padros
    Citation: Research Involvement and Engagement 2022 8:67
  15. Lung cancer has one of the highest incidence and mortality rates worldwide. Physical activity can provide those diagnosed with lung cancer with several physical and psychological benefits. However, the examina...

    Authors: Jordan Curry, Helen Roberts, Alan Smith, Diane Riley, Mark Pearson and Cynthia C. Forbes
    Citation: Research Involvement and Engagement 2022 8:66
  16. Potential solutions to bridging the research practice gap include collaborative frameworks and models. Yet there is little evidence demonstrating their application in practice. In addressing this knowledge gap...

    Authors: Tania Pearce, Myfanwy Maple, Kathy McKay, Anthony Shakeshaft and Sarah Wayland
    Citation: Research Involvement and Engagement 2022 8:65
  17. Historically, disabled people have been marginalised in research that traditionally adopted a medical model perspective. Since the 1970’s, there has been a shift from research on disabled people to research wi...

    Authors: Lorna Montgomery, Berni Kelly, Ursula Campbell, Gavin Davidson, Leanne Gibson, Louise Hughes, Jadzia Menham, Linda McKendry, Leslie-Anne Newton, Alex Parkinson, Ethan Redmond, Joseph Turnbull, Paul Webb and Lisamarie Wood
    Citation: Research Involvement and Engagement 2022 8:64
  18. The effects of stakeholder engagement, particularly in comparative effectiveness trials, have not been widely reported. In 2014, eight comparative effectiveness studies targeting African Americans and Hispanic...

    Authors: Tiffany Dy, Winifred J. Hamilton, C. Bradley Kramer, Andrea Apter, Jerry A. Krishnan, James W. Stout, Stephen J. Teach, Alex Federman, John Elder, Tyra Bryant-Stephens, Rebecca J. Bruhl, Shawni Jackson and Kaharu Sumino
    Citation: Research Involvement and Engagement 2022 8:63
  19. Involvement of young partners by experience in research is on the rise and becoming expected practice. However, literature on how to promote equitable and meaningful involvement of young people is scarce. The ...

    Authors: Linda Nguyen, Bente van Oort, Hanae Davis, Eline van der Meulen, Claire Dawe-McCord, Anita Franklin, Jan Willem Gorter, Christopher Morris and Marjolijn Ketelaar
    Citation: Research Involvement and Engagement 2022 8:62
  20. Globally many older persons with dementia are living at home to maintain independence within the community. As older persons with dementia transition from early to moderate or advanced stages of dementia they ...

    Authors: Marie-Lee Yous, Jenny Ploeg, Sharon Kaasalainen and Carrie McAiney
    Citation: Research Involvement and Engagement 2022 8:61
  21. Including youth with disabilities and their families as partners in childhood disability research is imperative but can be challenging to do in an authentic and meaningful way. Simulation allows individuals to...

    Authors: Samantha K. Micsinszki, Nadia L. Tanel, Julia Kowal, Gillian King, Dolly Menna-Dack, Angel Chu and Michelle Phoenix
    Citation: Research Involvement and Engagement 2022 8:60
  22. We aimed to contribute to developing practical guidance for implementing person-centred quality indicators (PC-QIs) for primary care in Alberta, Canada. As a first step in this process, we conducted stakeholde...

    Authors: Kimberly Manalili, Catherine M. Scott, Brenda Hemmelgarn, Maeve O’Beirne, Allan L. Bailey, Michel K. Haener, Cyrene Banerjee, Sue P. Peters, Mirella Chiodo, Fariba Aghajafari and Maria J. Santana
    Citation: Research Involvement and Engagement 2022 8:59
  23. This paper considers remote working in patient public involvement and engagement (PPIE) in health and social care research. With the advent of the Covid-19 pandemic and associated lock-down measures in the UK ...

    Authors: Elisa Jones, Lucy Frith, Mark Gabbay, Naheed Tahir, Muhammad Hossain, Mark Goodall, Katie Bristow and Shaima Hassan
    Citation: Research Involvement and Engagement 2022 8:58
  24. Youth violence is a global public health issue and the highest rates are reported in Low and Middle-Income Countries (LMICs). Higher rates of youth violence are reported in Sri Lanka as well. Students who fail...

    Authors: Nadeeka Rathnayake, Kalpani Abhayasinghe, Jayamal De Silva and G. N. Duminda Guruge
    Citation: Research Involvement and Engagement 2022 8:57
  25. Early childhood is a critical period of development for infants, young children, and their families. An array of services, programs, and interventions exist to support families during this life stage, often de...

    Authors: Erica Koopmans, Lisa Provencher, Lauren Irving and Caroline Sanders
    Citation: Research Involvement and Engagement 2022 8:56
  26. Patient engagement in research consists in involving patients as partners across the research cycle. This practice has quickly become an international standard, with funding bodies actively encouraging it. As ...

    Authors: Jonathan Lauzon-Schnittka, Sophie Audette-Chapdelaine, Denis Boutin, Catherine Wilhelmy, Anne-Marie Auger and Magaly Brodeur
    Citation: Research Involvement and Engagement 2022 8:55
  27. Older adults have been disproportionately impacted by the COVID-19 pandemic. COVID-19 restrictions such as stay at home orders and physical distancing measures have been implemented to reduce older adults’ ris...

    Authors: Claire Adams, Paul Albert, Tim Benson, Anne Cordingley, Barbara Daniels, Noreen Fynn, Mary Gurgone, Chris Jeffery, Ann White and Natalie Strobel
    Citation: Research Involvement and Engagement 2022 8:54
  28. Patients play a central role in nursing preceptorship relationships, a professional educational relationship between a staff nurse and student nurse that is grounded in providing patient care. Yet the patient ...

    Authors: Philip Hardie, Aidan Murray, Suzi Jarvis and Catherine Redmond
    Citation: Research Involvement and Engagement 2022 8:53
  29. In the COVID-19 pandemic, numerous researchers postponed their patient and public involvement (PPI) activities. This was mainly due to assumptions on patients’ willingness and skills to participate digitally. ...

    Authors: Jennifer Engler, Franziska Brosse, Truc Sophia Dinh, Astrid-Alexandra Klein, Maria-Sophie Brueckle, Jenny Petermann, Christiane Muth, Karola Mergenthal, Marjan van den Akker and Karen Voigt
    Citation: Research Involvement and Engagement 2022 8:52
  30. The Canadian Strategy for Patient-Oriented Research supports the inclusion of patients as partners throughout the research process. Purposeful and meaningful engagement of patient partners after stroke can pre...

    Authors: Alyson Kwok, Deacon Cheung, Maysyn Gordon, Evan Mudryk and Patricia J. Manns
    Citation: Research Involvement and Engagement 2022 8:51
  31. A key component of patient-oriented research is the engagement of patients as partners in the design and conduct of health research. While there is now national infrastructure and networks to support the engag...

    Authors: Stuart G. Nicholls, Grace Fox, Zarah Monfaredi, Evelyn Poole, Chantelle Garritty, Alies Maybee, Justin Presseau, Beverley Shea and Dean A. Fergusson
    Citation: Research Involvement and Engagement 2022 8:50
  32. Albertans4HealthResearch, supported by the Alberta Strategy for Patient-Oriented Research Patient Engagement Team, hosted a virtual round table discussion to develop a list of considerations for successful par...

    Authors: Maria J. Santana, D’Arcy Duquette, Paul Fairie, Ingrid Nielssen, Sumedh Bele, Sadia Ahmed, Tiffany Barbosa and Sandra Zelinsky
    Citation: Research Involvement and Engagement 2022 8:49
  33. Patient and Public Involvement (PPI) is the active partnership between researchers, patients and laypeople in the process of creating research. PPI in stroke aphasia research aims to ensure equal opportunities...

    Authors: Marina Charalambous, Alexia Kountouri, Phivos Phylactou, Ioanna Triantafyllidou, Jean-Marie Annoni and Maria Kambanaros
    Citation: Research Involvement and Engagement 2022 8:48
  34. Conducting mixed methods research is critical for healthcare researchers to understand attitudes, behaviors, and experiences on health-related topics, such as vaccine acceptance. As the COVID-19 pandemic has m...

    Authors: Lisa Shea, Jennifer Bushen, Nina Ahmad, Gabrielle Geonnotti, Joy LaMori, Stephanie Terrey, Pepa Gonzalez and Jill Shuman
    Citation: Research Involvement and Engagement 2022 8:47
  35. Partnering with patients and family members affected by cancer is essential for meaningful research, public engagement and outreach, and advocacy activities.

    Authors: Sevtap Savas, Holly Etchegary, Teri Stuckless, Cindy Whitten, Jason Wiseman, Derrick Bishop, John King, Janine Cutting and Darrell Peddle
    Citation: Research Involvement and Engagement 2022 8:46
  36. Smartphones are being increasingly used for research owing to their multifunctionality and flexibility, and crowdsourced research using smartphone applications (apps) is effective in the early detection and ma...

    Authors: Kenta Fujio, Takenori Inomata, Kumiko Fujisawa, Jaemyoung Sung, Masahiro Nakamura, Masao Iwagami, Kaori Muto, Nobuyuki Ebihara, Masahiro Nakamura, Mitsuhiro Okano, Yasutsugu Akasaki, Yuichi Okumura, Takuma Ide, Shuko Nojiri, Masashi Nagao, Keiichi Fujimoto…
    Citation: Research Involvement and Engagement 2022 8:45
  37. Knowledge about the specific engagement activities pursued and associated impacts of patient engagement in research in Canada remains nascent. This study aimed to describe engagement activities and perceived i...

    Authors: Anna Maria Chudyk, Roger Stoddard, Nicola McCleary, Todd A. Duhamel, Carolyn Shimmin, Serena Hickes and Annette S. H. Schultz
    Citation: Research Involvement and Engagement 2022 8:44
  38. Although interest in Patient and Public Involvement in health-related research is growing, there seems to be a lack of guidance supporting researchers in deciding on methods and levels for Patient and Public I...

    Authors: Jeanette Finderup, Louise Engelbrecht Buur, Sarah Cecilie Tscherning, Annesofie Lunde Jensen, Anne Wilhøft Kristensen, Anne Poder Petersen, Bente Skovsby Toft, Gitte Susanne Rasmussen, Pernille Skovlund, Tina Wang Vedelø and Lotte Ørneborg Rodkjær
    Citation: Research Involvement and Engagement 2022 8:43
  39. Despite a movement toward the inclusion of patient partners or advisors as part of the research team in all funded studies, few publications have discussed patient engagement from the patient partners’ perspec...

    Authors: Suzanne Madison, Alex D. Colon-Moya, Wilfredo Morales-Cosme, Margie Lorenzi, Aracelis Diaz, Bridget Hickson, Kathy Monteiro, Alexander Muniz Ruiz, Addie Perez, Richard Redondo, Dennis Reid, Janet Robles, Marsha Santiago, Opal Thompson, Joyce Wade, Mary White…
    Citation: Research Involvement and Engagement 2022 8:42
  40. In 2017, the British Columbia (Canada) SUPPORT (SUpport for People and Patient-Oriented Research) Unit created six methods clusters to advance methodologies in patient and public oriented research (POR). The k...

    Authors: Martha L. P. MacLeod, Jenny Leese, Leana Garraway, Nelly D. Oelke, Sarah Munro, Sacha Bailey, Alison M. Hoens, Sunny Loo, Ana Valdovinos, Ursula Wick, Peter Zimmer and Linda C. Li
    Citation: Research Involvement and Engagement 2022 8:41
  41. Community engagement or community involvement in Aboriginal health research is a process that involves partnering, collaborating and involving Aboriginal and Torres Strait Islander people or potential research...

    Authors: Penny O’Brien, Ryan Prehn, Naz Rind, Ivan Lin, Peter F. M. Choong, Dawn Bessarab, Juli Coffin, Toni Mason, Michelle M. Dowsey and Samantha Bunzli
    Citation: Research Involvement and Engagement 2022 8:40
  42. Public Participation Involvement Engagement (PPIE) is now strongly encouraged across health policy and research. Coproduction, although linked to PPIE is a way of working that can be applied to work collaborat...

    Authors: Aamnah Rahman, Salma Nawaz, Eisha Khan and Shahid Islam
    Citation: Research Involvement and Engagement 2022 8:39
  43. Authors: Marita Hennessy, Laura Linehan, Rebecca Dennehy, Declan Devane, Rachel Rice, Sarah Meaney and Keelin O’Donoghue
    Citation: Research Involvement and Engagement 2022 8:38

    The original article was published in Research Involvement and Engagement 2022 8:18

  44. Digital contact tracing and exposure notification apps have quickly emerged as a potential solution to achieve timely and effective contact tracing for the SARS-CoV-2 virus. Nonetheless, their actual uptake re...

    Authors: Esli Osmanlliu, Jesseca Paquette, Annie-Danielle Grenier, Paul Lewis, Marie-Eve Bouthillier, Sylvain Bédard and Marie-Pascale Pomey
    Citation: Research Involvement and Engagement 2022 8:37
  45. Patient and Public Involvement is most usually framed in the context of designing, conducting and/or disseminating research. Participatory methods such as Experience-Based Co-Design (EBCD) further allow servic...

    Authors: Mary Anne Lagmay Tanay, Jo Armes, Catherine Oakley, Lesley Sage, Deb Tanner, Jose Roca, Liz Bryson, Barbara Greenall, Lauren Urwin, Toni Wyatt and Glenn Robert
    Citation: Research Involvement and Engagement 2022 8:36
  46. The Tele- Exercise and Multiple Sclerosis (TEAMS) study, funded by the Patient Centered Outcome Research Institute (PCORI), is a pragmatic, cluster randomized controlled trial aimed at comparing the effectiven...

    Authors: Tracy Flemming Tracy, Hui-Ju Young, Byron Lai, Beverly Layton, Dolly Stokes, Mark Fry, Tapan Mehta, Emily S. Riser and James Rimmer
    Citation: Research Involvement and Engagement 2022 8:35
  47. Those whose lives are most directly impacted by health care—patients, caregivers, and frontline staff—are ideally situated to improve patient health care services and care quality. Despite a proliferation of l...

    Authors: Sarah Davis, Nancy Pandhi, Barbara Warren, Njeri Grevious, Madison Crowder, Haley Ingersoll, Elizabeth Perry, Andrew Sussman and Rachel Grob
    Citation: Research Involvement and Engagement 2022 8:34
  48. The rapid transition to digital working, accelerated due to the response to the COVID-19 pandemic, has impacted the involvement of patients and public in research. This paper presents experiences of engaging i...

    Authors: Mauricio Molinari-Ulate, Rebecca Woodcock, Isabelle Smith, Henriëtte G. van der Roest, Manuel A. Franco-Martín and Michael P. Craven
    Citation: Research Involvement and Engagement 2022 8:33
  49. Surgery is one of the most common patient experiences in the health care system. Yet, efforts to engage patients in surgical safety research have not matched those of other health care fields. This is a critic...

    Authors: Cole Etherington, Maxime Lê, Laurie Proulx and Sylvain Boet
    Citation: Research Involvement and Engagement 2022 8:32

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