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Table 3 Reported impacts of involvement on research

From: ‘Is it worth doing?’ Measuring the impact of patient and public involvement in research

Categories of impact identified through literature reviews

1. Impact on the research agenda—the topic, research question and funding decisions

2. Impact on research design and delivery—influencing the research design, tools and choice of method, recruitment, data collection and analysis, writing-up and dissemination.

3. Impact on research ethics—the consent process and developing ethically acceptable research

4. Impact on the people involved

5. Impact on the researchers

6. Impact on participants

7. Impact on the wider community

8. Impact on community organisations

9. Impact on implementation and change