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Research Involvement and Engagement

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  1. Content type: Letter

    Roger Wilson challenged cancer professionals in research and care to place the patient perspective and patient reported outcome measures centre stage. The ability to collect information from patients using str...

    Authors: Peter Selby and Galina Velikova

    Citation: Research Involvement and Engagement 2018 4:25

    Published on:

    The original article was published in Research Involvement and Engagement 2018 4:7

  2. Content type: Commentary

    Breast cancer is a diverse and varied disease. Recent research has shown that the collection of multiple biopsies before surgery can help researchers determine how the cancer is responding to treatment and can...

    Authors: Leona M. Batten, Indrani Subarna Bhattacharya, Laura Moretti, Joanne S. Haviland, Marie A. Emson, Sarah E. Miller, Monica Jefford, Mairead MacKenzie, Maggie Wilcox, Marie Hyslop, Rachel Todd, Claire F. Snowdon and Judith M. Bliss

    Citation: Research Involvement and Engagement 2018 4:22

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  3. Content type: Commentary

    Patients usually understand their disease and lifestyle needs better than many medical professionals. They also have important ideas about what research would be most beneficial to their lives, especially on h...

    Authors: Laura B. Mader, Tess Harris, Sabine Kläger, Ian B. Wilkinson and Thomas F. Hiemstra

    Citation: Research Involvement and Engagement 2018 4:21

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  4. Content type: Commentary

    In Canada, and internationally, there is an increased demand for patient engagement in health care research. Patients are being involved throughout the research process in a variety of roles that extend beyond...

    Authors: Michelle Phoenix, Tram Nguyen, Stephen J. Gentles, Sandra VanderKaay, Andrea Cross and Linda Nguyen

    Citation: Research Involvement and Engagement 2018 4:20

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  5. Content type: Commentary

    Patient engagement is an opportunity for people with experience of a health-related issue to contribute to research on that issue. The Canadian Strategy for Patient-Oriented Research (SPOR) highlights patient ...

    Authors: Nicole Doria, Brian Condran, Leah Boulos, Donna G. Curtis Maillet, Laura Dowling and Adrian Levy

    Citation: Research Involvement and Engagement 2018 4:19

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  6. Content type: Research article

    Following an initial NHS Health Check appointment, the National Institute for Health and Care Excellence (NICE) suggest patients with QRISK2 scores of ≥10% should be offered advice on lifestyle and the risks a...

    Authors: Brian McMillan, Sarah Fox, Moira Lyons, Suzy Bourke, Manoj Mistry, Angela Ruddock, Benjamin Brown, Mei Yee Tang and Harm Van Marwijk

    Citation: Research Involvement and Engagement 2018 4:18

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  7. Content type: Research article

    In the UK, more patients go to primary care than other parts of the health service. Therefore it is important for research into primary care to include the insights and views of people who receive these servic...

    Authors: Steven Blackburn, Sarah McLachlan, Sue Jowett, Philip Kinghorn, Paramjit Gill, Adele Higginbottom, Carol Rhodes, Fiona Stevenson and Clare Jinks

    Citation: Research Involvement and Engagement 2018 4:16

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  8. Content type: Research article

    With the growing movement to engage patients in research, questions are being asked about who is engaging patients and how they are being engaged. Internationally, research groups are supporting and funding pa...

    Authors: Dean Fergusson, Zarah Monfaredi, Kusala Pussegoda, Chantelle Garritty, Anne Lyddiatt, Beverley Shea, Lisa Duffett, Mona Ghannad, Joshua Montroy, M. Hassan Murad, Misty Pratt, Tamara Rader, Risa Shorr and Fatemeh Yazdi

    Citation: Research Involvement and Engagement 2018 4:17

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  9. Content type: Research article

    Including patient and public involvement (PPI) in health research is thought to improve research but it is hard to be clear exactly how it helps. This is because PPI takes many forms, is sometimes only token a...

    Authors: Cindy Mann, Simon Chilcott, Katrina Plumb, Edmund Brooks and Mei-See Man

    Citation: Research Involvement and Engagement 2018 4:15

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  10. Content type: Research article

    Patient and public involvement (PPI) is increasingly recognised as important in research. Most PPI takes place face-to-face, but this can be difficult for people who are unwell or have caring responsibilities....

    Authors: Lisa Jane Brighton, Sophie Pask, Hamid Benalia, Sylvia Bailey, Marion Sumerfield, Jana Witt, Susanne de Wolf-Linder, Simon Noah Etkind, Fliss E. M. Murtagh, Jonathan Koffman and Catherine J. Evans

    Citation: Research Involvement and Engagement 2018 4:14

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  11. Content type: Research article

    In recent years, the importance of involving patients in research has been increasingly recognized because it increases the relevance and quality of research, facilitates recruitment, enhances public trust and...

    Authors: Julie Allard, Fabián Ballesteros, Samantha J. Anthony, Vincent Dumez, David Hartell, Greg Knoll, Linda Wright and Marie-Chantal Fortin

    Citation: Research Involvement and Engagement 2018 4:13

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  13. Content type: Commentary

    Public involvement can impact on research, on the public who give advice, on the researchers and the research participants. Evaluating impact is an important part of the research process. Two members of a hosp...

    Authors: Jim Gordon, Sue Franklin and Sabrina A. Eltringham

    Citation: Research Involvement and Engagement 2018 4:11

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  14. Content type: Commentary

    The involvement of patients in health research has resulted in the development of more effective interventions and policies in healthcare that respond to the needs of healthcare users. This article examines ho...

    Authors: Roberta L. Woodgate, Melanie Zurba and Pauline Tennent

    Citation: Research Involvement and Engagement 2018 4:9

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  15. Content type: Methodology

    Outcome domains are aspects of a condition that matter to patients and clinicians and can be measured to assess treatment effects. For tinnitus, examples include ‘tinnitus loudness’ and ‘ability to concentrate...

    Authors: Harriet Smith, Adele Horobin, Kathryn Fackrell, Veronica Colley, Brian Thacker and Deborah A. Hall

    Citation: Research Involvement and Engagement 2018 4:8

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  16. Content type: Protocol

    Tailoring and testing a peer support decision making strategy with First Nations, Inuit and Métis people making decisions about their cancer care: A study protocol.

    Authors: Janet Jull, Maegan Mazereeuw, Amanada Sheppard, Alethea Kewayosh, Richard Steiner and Ian D. Graham

    Citation: Research Involvement and Engagement 2018 4:6

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  17. Content type: Commentary

    Patient involvement in research is about adding value rather than commenting on technical quality. After 15 years as an involved patient in cancer research I started looking around and I found I was asking mys...

    Authors: Roger Wilson

    Citation: Research Involvement and Engagement 2018 4:7

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    The Letter to this article has been published in Research Involvement and Engagement 2018 4:25

  18. Content type: Correction

    After publication of this supplement [1], it was brought to our attention that errors were apparent in the following abstracts and are included in this correction.

    Authors: Elspeth Mathie, Helena Wythe, Diane Munday, Paul Millac, Graham Rhodes, Nick Roberts, Jean Simpson, Nat Barden, Penny Vicary, Amander Wellings, Fiona Poland and Julia Jones

    Citation: Research Involvement and Engagement 2018 4:12

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    The original article was published in Research Involvement and Engagement 2017 3:27

  19. Content type: Review article

    As much as 85 % of health research is believed to be wasted because it is not published or reported, the design is poor or does not consider what is already known in the topic area. Although a great deal of wo...

    Authors: Virginia Minogue, Mary Cooke, Anne-Laure Donskoy, Penny Vicary and Bill Wells

    Citation: Research Involvement and Engagement 2018 4:5

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  20. Content type: Methodology

    The purpose of this paper is to describe a patient engagement event designed to create an educational workbook with smokers who drink alcohol at harmful levels. The goal was to create a workbook that combined ...

    Authors: Nadia Minian, Aliya Noormohamed, Laurie Zawertailo, Dolly Baliunas, Norman Giesbrecht, Bernard Le Foll, Jürgen Rehm, Andriy Samokhvalov and Peter L. Selby

    Citation: Research Involvement and Engagement 2018 4:4

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  21. Content type: Methodology

    In 2015 a microbiology team in Bristol joined a European research project that aims to develop new antibiotics to fight drug resistant infections. The microbiology team were convinced of the benefits of patien...

    Authors: Sally Grier, David Evans, Andy Gibson, Teh Li Chin, Margaret Stoddart, Michele Kok, Richard Campbell, Val Kenny and Alasdair MacGowan

    Citation: Research Involvement and Engagement 2018 4:3

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  23. Content type: Research article

    There are currently 15 million Americans who provide over 80% of the care required by their family members with Alzheimer’s disease and other dementias. Yet care for caregivers continues to be fragmented and f...

    Authors: Carole L. White, Kristen J. Overbaugh, Carolyn E. Z. Pickering, Bridgett Piernik-Yoder, Debbie James, Darpan I. Patel, Frank Puga, Lark Ford and James Cleveland

    Citation: Research Involvement and Engagement 2018 4:1

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  24. Content type: Review article

    If people can read, understand and act on health information to better their health and reduce illness, they are thought to have “adequate” health literacy. Poor health literacy can mean people are less able t...

    Authors: Stephanie Howard Wilsher, Julii Brainard, Yoon Loke and Charlotte Salter

    Citation: Research Involvement and Engagement 2017 3:31

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  25. Content type: Correction

    After publication of our article [1] it has come to our attention that Fig. 3 was accidentally omitted. In the section “Ease of reading”, the sentence “FRE scores were recorded for the original, author-revised...

    Authors: Emma Kirkpatrick, Wendy Gaisford, Elaine Williams, Elizabeth Brindley, Doreen Tembo and David Wright

    Citation: Research Involvement and Engagement 2017 3:32

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    The original article was published in Research Involvement and Engagement 2017 3:17

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Research Involvement and Engagement

ISSN: 2056-7529

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