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Methodology
While the patient and public involvement (PPI) evidence base has expanded over the past decade, the quality of reporting within papers is often inconsistent, limiting our understanding of how it works, in what...
Research Involvement and Engagement 2017 3:13
Published on: 2 August 2017
Research article
There are a growing number of mobile phones, watches and electronic devices which can be worn on the body to track aspects of health and well-being, such as daily steps, sleep and exercise. Dementia researcher...
Research Involvement and Engagement 2017 3:12
Published on: 1 August 2017
Research article
When designing clinical trials it is important to involve members of the public, who can provide a view on what may encourage or prevent people participating and on what matters to them. This is known as Publi...
Research Involvement and Engagement 2017 3:11
Published on: 25 May 2017
Research article
Many funding bodies within the United Kingdom and globally have encouraged public involvement in research. The Department of Health has also called public involvement a sign of good research. Despite the wide...
Research Involvement and Engagement 2017 3:8
Published on: 4 May 2017
Research article
The Experience Based Design (EBD) approach involves patients, staff and members of the public working together to improve a service. This paper evaluates the methods that are used to involve patients and membe...
Research Involvement and Engagement 2017 3:10
Published on: 26 April 2017
Protocol
Researchers are expected to actively involve stakeholders (including patients, the public, health professionals, and others) in their research. Although researchers increasingly recognise that this is good pra...
Research Involvement and Engagement 2017 3:9
Published on: 21 April 2017
Research article
Members of the public share their views with researchers to improve health and social care research. Lay assessing is one way of doing this. This is where people, drawing upon personal and general life experie...
Research Involvement and Engagement 2017 3:7
Published on: 5 April 2017
Commentary
Public involvement in research has become an important and integral part of the research process in health and social care, from the early stages of research prioritisation and development to the later stages ...
Research Involvement and Engagement 2017 3:5
Published on: 4 April 2017
Commentary
Researchers who conduct studies in health and social care are encouraged to involve the public as early as possible in the process of designing their studies. Before their studies are allowed to start research...
Research Involvement and Engagement 2017 3:6
Published on: 4 April 2017
Research article
Involving people in health research is increasingly recognised as being important to make sure that research is focused more on the needs of people who use health services. At present, ideas about what should ...
Research Involvement and Engagement 2017 3:4
Published on: 1 February 2017
Research article
A number of health technology assessment (HTA) organisations have developed processes to engage patients in the assessment of new health technologies such as pharmaceuticals, diagnostic tests, devices or medic...
Research Involvement and Engagement 2017 3:2
Published on: 10 January 2017
Commentary
Health Technology Assessment (HTA) is an evidence-based decision-making process, focusing on evaluating health technologies for funding within a healthcare system. ‘Health technologies’ include medications, me...
Research Involvement and Engagement 2017 3:3
Published on: 10 January 2017
Research article
Patient and public involvement (PPI) in research is very important, and funders and the NHS all expect this to happen. What this means in practice, and how to make it really successful, is therefore an importa...
Research Involvement and Engagement 2017 3:1
Published on: 9 January 2017
Research article
Cochrane is the largest international producer of systematic reviews of clinical trial evidence. We looked for published evidence that reports where consumers (patients and the public) have been involved in Co...
Research Involvement and Engagement 2016 2:36
Published on: 21 December 2016
Research article
Ultrasound examinations during pregnancy have led to an increased number of detected heart defects in fetuses. Pregnant women and their partners are often unprepared for these news, and experience several diff...
Research Involvement and Engagement 2016 2:35
Published on: 15 December 2016
Research article
Certain patient groups are reluctant to engage with clinical research and consequently findings are not always truly representative of the wider population. With the emphasis on evidence-based clinical practic...
Research Involvement and Engagement 2016 2:34
Published on: 12 December 2016
Research article
PLM is an online platform that provides tools for individuals to track their health and connect with other patients and while PLM has invited patients to participate in various research projects throughout the...
Research Involvement and Engagement 2016 2:33
Published on: 9 December 2016
Review article
Paediatric Intensive Care (PIC) provides care to extremely ill children. Research in this area can be difficult because children are often too sick to discuss being involved in a study and parents are too upse...
Research Involvement and Engagement 2016 2:32
Published on: 7 November 2016
Methodology
The aim of this project was to find out the priorities for research that could improve fundamental care. ‘Fundamental care’ covers all aspects of basic care in hospital wards, such as helping with core physica...
Research Involvement and Engagement 2016 2:31
Published on: 12 October 2016
Research article
Food allergy is a serious public health problem in Canada and other high-income countries, as it is potentially life threatening and severely impacts the quality of life for individuals and their families. Yet...
Research Involvement and Engagement 2016 2:27
Published on: 1 September 2016
Methodology
There are well documented benefits to involving patients and the public in research. However, there is little research published about their involvement in large complex studies such as cohort multiple Randomi...
Research Involvement and Engagement 2016 2:30
Published on: 30 August 2016
Research article
There is a consensus that patients and the public should be involved in research in a meaningful way. However, to date, lay people have been mostly involved in developing research ideas and commenting on patie...
Research Involvement and Engagement 2016 2:29
Published on: 20 August 2016
Review article
Public involvement is required for applied health research funded in the UK. One of the largest funders, the National Institute of Health Research (NIHR), makes it clear that it values the knowledge of patient...
Research Involvement and Engagement 2016 2:28
Published on: 17 August 2016
Research article
For the elderly to get the care and services they need, they may need to make the difficult decision about staying in their home or moving to another home. Many other people may be involved in their care too (...
Research Involvement and Engagement 2016 2:26
Published on: 19 July 2016
Commentary
This commentary article describes three interactive workshops that explored how patients can contribute to decisions about what outcomes are measured in clinical trials across the world. Outcomes like quality ...
Research Involvement and Engagement 2016 2:25
Published on: 8 July 2016
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