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Table 2 Consumer roles and identified impacts on outputs

From: A systematic scoping review of the evidence for consumer involvement in organisations undertaking systematic reviews: focus on Cochrane

Consumer roles (defined by role in review or organisation) Consumer activities in review process Consumer roles in increasing accessibility of reviews Consumer roles in knowledge transfer Impacts identified
Membership of editorial teams Hand searching Plain language summary preparation Coordination of workshops, seminars and presentations on CRG activities during consumer organisation conferences Use of consumer-oriented/more relevant outcomes
Consumer coordination Obtaining information Removal of unfriendly jargon from synopses & other documentation Participation in working groups Changes in language – greater accessibility
Review authorship Peer review of protocols and reviews Collaboration with external consumer organisations to publish synopses Dissemination Informing of/altering methodology
Peer reviewer Priority setting Translation Raising awareness of evidence-based healthcare Adding “depth” to the review
Advisory group member Incorporation of patient-derived outcomes Publication of synopses/other CRG documentation in languages other than English Identifying the needs for non-professional consumer involvement Better prioritisation of review topics
Stakeholder (various stages) Input into relevance of review question   Recruiting others Increased relevance of review
Member of the public    Peer mentoring Increased timeliness
    Training other consumers Reduction in bias
    Input into funding bids Broader and more inclusive literature searches
    Developing partnerships with other relevant organisations More clearly defined research questions
    Contributions to newsletter Identification of additional included studies
    Preparing decision aids for patients Increased depth, relevance and usefulness of review
     Indirect benefits to all involved