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Table 2 Comparison of Maritime SPOR SUPPORT Unit design criteria for focus and discussion groupsa

From: Sharpening the focus: differentiating between focus groups for patient engagement vs. qualitative research

Level of Distinction Characteristic Focus Groups Discussion Groups
High Type of participant Research participant - An individual whose data, or responses to interventions, stimuli, or questions by a researcher are relevant to answering a research question; also referred to as “human participant,” and in other policies/guidance as “subject” or “research subject” Patient Contributor – An individual who possesses relevant personal experience of the health condition in question, and/or as a caregiver. Patient contributors draw on this experience to inform research decision making
High Purpose Qualitative research method for data collection on the knowledge, attitudes, and experiences of participants through group interaction Tool for patient engagement to draw on patients’ expertise to inform aspects of research or project decision-making
Medium Prior consultation and/or approval Required – Project principal investigator; appropriate institutional research ethics board (REB) Required – Project principal investigator; patient engagement/facilitation expert
Low Monitored Required – Project principal investigator or approved research team member Required – Project principal investigator or approved research team member; patient engagement expert
Low Identification of participants Participants are formally recruited and invited to participate based on their shared experiences as related to research objectives Patients are invited to participate based on their lived experience and expertise relevant to the project objectives
Low Location Location must be approved by REB. Public locations such as community centers or libraries are ideal; private and comfortable locations within academic or institutional settings are alternative options. Video or teleconferencing may also be used Public locations such as community centers or libraries are ideal; private and comfortable locations within academic or institutional settings are alternative options. Video or teleconferencing may also be used
High How information and/or data is collected With REB approval and informed consent from participants, data collection can be audiotaped, transcribed verbatim, videotaped, or recorded using field notes. Data is collected by a non-participating moderator (e.g. researcher, qualified staff, research assistant, graduate student, etc.) using an interview guide to facilitate discussion Collaborative and interactive forms of recording are ideal. These can include written transcripts/notes, shared note-taking (e.g. flip-charts), participant notes, and comments through activities (e.g. card storming)
Low Compensation Financial compensation (money or a gift card) is the most common type of incentive for participation. Research participants are compensated at the conclusion of the focus group and each participant receives equivalent payment. Providing a financial incentive offers several benefits, such as: compensating individuals for travel and time, recognizing the value of the participants, decreasing recruitment time, and increasing accountability of participants MSSU reimburses travel expenses (e.g. mileage, parking) for discussion group contributors. Nationally, SUPPORT Units and Networks are increasingly compensating patients for participation in engagement activities. The amount and form of compensation depends on the nature of the activity in question; for discussion groups, amounts can range from $30 to $50
High How information and/or data is used and/or analyzed Transcripts, written notes and audio/video recordings (transcribed verbatim) are analyzed using qualitative research techniques. Data analysis may include reading and coding of transcripts, information classification, and identification of quotes and/or examples of themes for research results Information is used to support research or project decision-making (e.g. a list of patient-made recommendations for researchers), or patients make decisions directly. No data analysis takes place
High Research ethics board (REB) review Required – As outlined by the Tri-Council Policy Statement, approval must be obtained prior to any focus group work (including recruitment, planning sessions, and/or pilot) Should not be required – The Tri-Council Policy Statement does not cover patient engagement. Patients are involved as subject matter experts to consult on a project and are not research subjects
Medium Written statement of intent Required – Informed consent requires a plain language description of the research project with any further documentation as required under REB approval, which must be delivered to participant(s) prior to participation Required – A plain language description of the activities and their relation to the research project must be provided prior to participation
Low Confidentiality agreement Required – Describe procedures for maintaining confidentiality in informed consent process Required – Discuss confidentiality with participant(s) and obtain written or verbal acknowledgment of agreement
Low Right to withdraw Yes, at any time; details subject to REB approval Yes, at any time
Medium Gathering of personal information (PI) Permitted – PI may be collected during focus groups as approved by REB and provincial privacy legislation Permitted, for administrative purposes only – PI such as contact information may be collected for administrative purposes with consent
High Dissemination May include written reports, scholarly journal articles, conference presentations, and/or other forms of dissemination A summary report should be shared with participants, indicating what feedback was taken, what was not, and why
  1. aAdapted from Table 8.1 in Krueger, R.A. & Casey, M.A., Focus Groups: A Practical Guide for Applied Research, Los Angeles: Sage, 2015, p. 182–184