Skip to main content

Table 1 Chronological time line of all user involving activities in the Empowerment Project (Jan 2015-Jan 2018)

From: User involvement in a Danish project on the empowerment of cancer patients – experiences and early recommendations for further practice

August 2014

Focus group discussing the proposal

February 2015

Recruitment of co-researchers

April 2015

Two day introduction and training course

May/June 2015

Correspondence with co-researchers around role descriptions, the concept of empowerment and web-page development (following on from discussions had at the training course)

August 2015

One day interview training and discussion of interview guide for the qualitative interviews

April 2015–April 2016

Systematic literature review [19]. Two co-researchers participated in the selection of papers and co-authored journal article

September 2015–March 2016

Qualitative interviews, eleven of them with co-researchers as peer interviewers

March 2016

PI and co-researcher co-presented at conference

March 2016

Workshop where coding and analysis of interviews was discussed

June 2016

Workshop with initial qualitative analysis

March 2016 – December 2016

Systematic literature review [20]. One co-researcher co-authored the paper

July 2016

First analysis of qualitative data was discussed with co-researchers via email correspondence

October 2016

PI and Co-researcher co-presented at conference

November 2016

Workshop about preliminary findings for journal article [10]

April 2017 – December 2017

Writing of journal article with one co-researcher co-authoring the paper

January–February 2017

Recruitment of five new co-researchers

February 2017

Workshop about the development of the questionnaire

March 2017

Introduction day for new co-researcher group

April 2017

Workshop about the development of the questionnaire

June 2017

Workshop about the development of the questionnaire and potential supplementing questionnaire, discussion of recruitment for survey

September 2017

Workshop with academic researchers and co-researchers, discussing the experiences of involvement in the project and beginning recommendations for user-involvement in Denmark

October 2017

Summary of workshop and draft recommendations sent out to all co-researchers and academic researchers for feedback and input

January 2018

Workshop about questionnaire