Table 5 Relationship building challenges and strategies reported by investigators and research partners
Relationship building | |||
|---|---|---|---|
General Challenge | General Strategy | Examples of Specific Strategies | |
Investigators | • Establishing positive relationships with affected communities • Extending authentic invitations to potential partners with diverse perspectives | • Strengthen relationships with affected communities • Ensure participation of partners with diverse perspectives | • Develop relationships with advocacy organizations to build community trust and to identify and invite partners • Increase community awareness about research areas and funded studies by posting on community-oriented blogs, discussion boards, and social media sites • Integrate breakout sessions by language group • Set meeting agendas where the historically least represented or most marginalized groups speak first and last |
Investigators and partners | • Ensuring partner and research team cohesion | • Engage partners early and consistently • Orient, train, and build capacity | • Develop project roadmaps to describe phase of the project and where the team and work are headed • Hold pre-meetings with patient and caregiver partners to prepare • Create mentoring opportunities for partners |
Partners | None described | • Connect partners to the research team | • Have face-to-face social gatherings in addition to project-oriented meetings • Create resource with all team and partners’ photos and biographies |