Table 3 Council members’ perceptions about their experience of involvement in the councils
Patients’ Perceptions (N = 22) | |
Patients’ confidence in their ability to identify CBPCP priorities to improve services and QIa, median (min-max) | |
At the beginning of the study (N = 22) | 5 (1–10) |
At the end of the study (N = 15) | 8 (4–9) |
Three main motives of patients to engage in the council at the beginning, n (%) | |
To help staff to improve healthcare and services | 22 (100.0) |
To improve patient experience of care in the CBPCP | 20 (78.0) |
To improve relevance of research projects | 17 (54.0) |
Patients satisfied with the training (in first meeting) (N = 21), n (%) | |
Definitely satisfied | 21 (100.0) |
Patients perceiving training (in first meeting) as useful for their participation (N = 21), n (%) | |
Totally agree | 20 (95.0) |
Not sure | 1 (5.0) |
Barriers to participation for patients, n (%) | |
Time constraints | 14 (60.0) |
Involvement in work or family activities | 11 (50.0) |
No perceived impact on services to CPBCP patients | 11 (50.0) |
No perceived impact on patient experience in the CPBCP | 11 (50.0) |
No funding / financial compensation | 1 (4.5) |
Patients’ perception that councils had an impact on the CBPCP at the end of the project (N = 15), n (%) | |
Yes | 10 (66.7) |
No | 0 (0.0) |
Don’t know | 5 (33.3) |
Patients’ willingness to participate again in such a council (N = 15), n (%) | |
Yes | 12 (80.0) |
No | 2 (13.3) |
Not sure | 1 (6.7) |
Patients satisfactiona regarding their participation in the council (N = 15), median (min-max) | |
Overall satisfaction | 8 (6–10) |
Interactions with other patients | 8 (5–10) |
Interactions with the clinician | 8 (8–10) |
Interactions with the manager | 9 (7–10) |
Interactions with the patient-expert facilitators | 9 (8–10) |
Clinicians and managers’ perceptions (N = 4) | |
Three main motives of clinicians and managers to engage in the councils, n (%) | |
To improve patient experience of care in the CBPCP | 4 (100.0) |
To improve practices of CBPCP health professionals | 4 (100.0) |
To contribute to developing new scientific knowledge | 4 (100.0) |
Barriers to participation for clinicians and managers, n (%) | |
Time constraints | 4 (100.0) |
No perceived impact on services to CPBCP patients | 1 (25.0) |
Lack of confidence in researchers | 2 (50.0) |
No funding / financial compensation | 0 (0.0) |