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Table 1 Research priorities identified during group discussions

From: Broadening diversity through creative involvement to identify research priorities

Young onset dementia South Asian women MSK and mental health
How to ensure everyone has access to a range of support after being diagnosed with dementia? What are the barriers and enablers to communication around menstruation and menopause? How to address lack of information related to accessing health care (lack of navigation, inadequate signposting, and lack of feedback for example following test results)?
How to address the risk of misinformation from the internet or other sources (social networks, self-diagnosis)?
How to improve the coordination of services/support for people with dementia (and their family)? How can we educate and support women from South Asian communities to engage in discussions around menstruation and menopause? Due to limited consultation time with healthcare professionals, how do we reduce the burden of finding the right information for self-management as and when needed?
How to support people with dementia to engage in positive health behaviours (e.g. a good diet, getting vaccinated for flu, keeping physically active)?   How to combat loneliness, and isolation when living with multiple physical and mental health conditions?
How to best educate people about the condition (the general public, healthcare professionals, people living with dementia)?   How to manage anxieties, “guilt/fear” of being judged as wasting health professionals’ time at consultations?
How to address the employment challenges and potential discrimination in the workplace that people with young onset dementia can encounter?   How to minimise cost and address the burden of uncoordinated care and treatments for multiple physical and mental health conditions?
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