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Table 5 Participant involvement in other patient engagement activities

From: The Canadian retinoblastoma research advisory board: a framework for patient engagement

Beyond CRRAB, have you participated in any other patient engagement activities in 2017?

N

Percent (%)

I participated in a research study as a study subject.

7

20.00

I was a team member on a research study.

12

34.29

I was a team member on a grant application.

9

25.71

I contributed to writing a scientific article.

10

28.57

I contributed to writing a summary of scientific research.

7

20.00

I attended an information session/workshop about patient engagement in research.

10

28.57

I attended a conference with strong patient participation and inclusion.

7

20.00

Total Engaged (across all other activities)

24

68.57