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Table 3 Summary of data from telephone interviews

From: Involving elderly research participants in the co-design of a future multi-generational cohort study

Questions (closed)

Results

% (number)

1. Do you think participants like yourself should be involved in helping design research projects, or just researchers?

Just researchers

39 (11/28)

Participants involved

46 (13/28)

Unsure

14 (4/28)

2. Would you be willing to provide feedback and share your views and perspectives by commenting throughout the research process?

Yes

100 (32/32)

No

0 (0/32)

3. Would you like to be more involved in study design rather than just participating?

Yes

65 (11/17)

No

12 (2/17)

Unsure

23 (4/17)

4. Would you be more or less likely to participate in research if participants were involved in design

More likely

25 (2/8)

Less likely

0 (0/8)

Unsure

13 (1/8)

Wouldn’t influence participation

13 (1/8)

5. What is your preferred mode of communication for being involved

Face to face event

25 (15/59)

Post

31 (18/59)

Online discussion

8 (5/59)

Online questionnaire

17 (10/59)

6. If genetic research results were made available, which types of genetic testing would you be interested in? a

Medical

97 (32/33)

Ancestry

97 (32/33)

Drug response

94 (31/33)

7. If only one option for genetic testing was available, which one would you prefer?

Medical

65 (11/17)

Ancestry

12 (2/17)

Drug response

6 (1/17)

No preference

18 (3/17)

  1. aNote that percentages indicate the percentage of participants who responded to that particular question with that response. On question six, participants could select multiple answers, so totals do not add up to 100%. The number in brackets represents (number of people with that response/ number of people asked that question)