Table 1 Examples of where people with different kinds of experiential knowledge are the most appropriate be involved in research projects
From: Who should I involve in my research and why? Patients, carers or the public?
Topic of the research | People with relevant experiential knowledge to contribute through involvement |
|---|---|
A clinical trial of a thumb splint for arthritis | People with arthritis of the thumbs (patients) |
Testing the use of insulin pumps in pregnancy | Women with diabetes who have had children or wish to have children or have experience of using pumps during pregnancy (patients) |
Evaluating new forms of psychological support for people affected by cancer | People with experience of different kinds of cancer (patients) Partners, relatives or friends of people who have had different kinds of cancer (carers) |
Testing a new screening programme for lung cancer in people who smoke but have no symptoms | People who smoke but do not have lung cancer (a specific group of members of the public) |
Exploration of the risk factors for hospitalisation with Covid-19 | People from groups who have been amongst those who have been hospitalised more often with COVID-19 e.g. older people, people from BAME groups (specific groups of members of the public) |
Testing new forms of support for distressed midwives | Midwives with experience of stress at work (health professionals) [13] Parents with experience of birth assisted by midwives under stress (a specific group of members of the public) |
Reducing the risk of asthma in damp housing | Residents in a local community with experience of living in damp housing (a specific group of members of the public) |
An intervention to increase up take of cervical screening by Asian women | Women eligible for cervical screening within the Asian community (a specific group of members of the public) |
Testing a new skin cream for babies with eczema | Parents/ carers of babies with eczema (carers) |
Evaluation of employment policies that aim to reduce health inequalities | Trade union representatives with experience of how their fellow workers fare under different policies [14] (a specific group of members of the public) |