1. Promote the active engagement of patients and families, including but not limited to research advisors, throughout the research process including: |
 (a) Identification of research priorities |
 (b) Development of research ideas |
 (c) Development of research methodology |
 (d) Review of research findings |
 (e) Dissemination of research findings |
2. Provide input on research proposals, including their child and family-centeredness and their strategies for patient and family engagement |
3. Facilitate the placement of research advisors on research teams |
4. Offer educational opportunities to research advisors to enhance their understanding of the research process |
5.. Offer educational offerings to researchers on the role of research advisors on research teams |
6. Provide forums for dialogue between patients, families, and researchers |
7. Promote awareness of the value of research and participation in research among patients and their families |
8. Establish standards related to high-quality patient and family engagement in research |