Box 1 Terminology used to describe methods of patient partner compensation [12, 17, 18]
From: Recognizing patient partner contributions to health research: a mixed methods research protocol
Term | Definition |
|---|---|
Reimbursement | Reimbursement of out-of-pocket expenses from engagement that are necessary to enable an individual to be engaged as a Patient Partner (travel, accommodations, parking, meals, child-care support or personal healthcare devices such as supplemental oxygen for a plane trip) Reimbursement is not a form of recognition/appreciation/compensation because patient partners should not pay out-of-pocket to be engaged in research |
Recognition (non-financial compensation) | Offering gifts, tokens of appreciation or services in exchange for patient partnership on a research project. For example, co-authorship on manuscripts or research material, facilitating patient partner attendance at a conference, education, or gifts (token of appreciation e.g. flowers, care package, gift card) |
Compensation (financial compensation) | Financial compensation extends beyond the partner’s reimbursement for out-of-pocket expenses and includes offering something of monetary value in exchange for their engagement. For example, honoraria, cash, or salary (formal payroll) Gifts or gift cards (for grocery stores, restaurants, retail stores, pre-paid visa gift cards etc.) are considered financial compensation when the value is informed by a formal conversion (i.e. 2 h of work at $25 per hour = $50 gift or gift card value or using fair market value) or patient partners decide that they want to receive payment in the form of gifts or gift cards |