Table 2 Interview questions for AYA- and researcher participants
Questions researcher | Questions AYA |
|---|---|
In which of the phase(s) of research did you collaborate with AYAs? [showing the research cycle] | Can you tell me something about your experiences with collaboration with researchers in scientific research? If needed or unclear: in which phases did you collaborate? [showing the research cycle] |
What practical/concrete tasks did AYAs have during this collaboration? What was expected from them? | Which tasks did you have during the collaboration? Can you provide specific examples? |
What did that actually look like in practice? [asking for specific examples] | What did you think about those tasks? What did you like? What did you not like? |
Why did you choose to work together in this specific phase(s)? | |
What were/are the difficulties with these phases (constraining factors)? And what went well (enabling factors)?* | What do you believe was pleasant about the collaboration? What could be points for improvement of the collaboration? |
What do you think of AYA involvement in [phase …]? Why (not)? [asking pros and cons per phase] | What do you think of AYA involvement in [phase …]? Why (not)? [asking pros and cons per phase] |
What do you think about involving AYAs in the entire research cycle? | What would your opinion be on being involved during all nine phases of research? |
Does your opinion differ when it concerns involving AYAs with a uncertain or poor cancer prognosis? Why? | Does your opinion differ when it concerns involving AYAs with a uncertain or poor cancer prognosis? Why? |
What do you think are difficulties when it concerns a collaboration with AYAs with life-limiting cancer? Why? | What do you think is important to keep in mind as a researcher when you want to collaborate with AYA patients? Are there differences when involving AYAs with life-limiting cancer? What could be constraining factors? |