A qualitative study on the involvement of adolescents and young adults (AYAs) with cancer during multiple research phases: “plan, structure, and discuss”

Table 5 Adjusted involvement matrix

	Practical support	Listener	Co-thinker	Advisor	Partner	Decision-maker
Identify topics
Prioritize
Formulate research question
Develop study design
Grant application
Recruitment
Conduct research
Analyze and interpret
Disseminate information
Implement
Evaluate

The adjusted Involvement Matrix is based on the nine phases of research [20] and the Involvement Matrix with five roles [17]. Two phases, namely recruitment and grant application were added based on our findings, together with the additional role of practical support. A larger version of this table to fill in, can be found in Additional File 4

ISSN: 2056-7529