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Box 2 Definitions

From: Laying the foundations of community engagement in Aboriginal health research: establishing a community reference group and terms of reference in a novel research field

Aboriginal Community Controlled Health Organisation (ACCHO)

Aboriginal Community Controlled Health Organisations are incorporated Aboriginal organizations which provide primary health care services initiated and operated by Aboriginal community members. They provide comprehensive culturally secure health care to the community.

Acknowledgement of Country

An Acknowledgement of Country is an opportunity to acknowledge and show respect to Aboriginal and/or Torres Strait Islander people as Traditional Owners and ongoing custodians of  Country. Acknowledgments are often made at the opening of events or the beginning of a meeting by acknowledging the Aboriginal nation and/or clan group name of which the event is taking place and acknowledging their cultures and long and continuing relationship with Country.

Community engagement

Also termed community involvement, community engagement in Aboriginal health research is a process that involves partnering, collaborating and involving Aboriginal community members or potential research participants to empower them to have a say in how research conducted with Aboriginal communities is conducted.

Cultural security

Cultural security can apply to both research processes and health care and occurs when research is conducted, or health services are offered, in a way that will not compromise the cultural rights, values, beliefs, knowledge systems and expectations of Aboriginal people [27].

Elder

An Aboriginal and/or Torres Strait Islander Elder is someone who is highly respected and recognized in their community as a custodian of cultural knowledge.

Stakeholders

Stakeholders were defined as anyone who has a ‘stake’ in the research, in particular those with important knowledge, experiences, expertise or views that should be taken into account [12]. In the context of the current study, stakeholders were Aboriginal community members who represented perspectives in Aboriginal health and Aboriginal health research or perspectives of Aboriginal people who experience osteoarthritis or living with someone who experiences osteoarthritis.

Sorry Business

Sorry Business is a term used to described Aboriginal cultural practices associated with death and grieving.