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Table 3 Changes in AllerSearch survey items based on PPI

From: Patient and public involvement in mobile health-based research for hay fever: a qualitative study of patient and public involvement implementation process

 

Before PPI

After PPI

Basic profile

Height, Weight, Age, Sibling composition, Contact lenses, Face wash, Sleep, Stool, Frequency of intake of yogurt, Materials in living room and bedroom, Pets, Tomato allergy

Height, Weight, Age, Sex, Ethnicity, Sibling composition, Education, Income, Current medical history, Mental illness, Smoking, Exercise, Contact lenses, Sleep, Stool, Materials in living room and bedroom, Pets, Frequency of intake of yogurt, natto, coffee, and supplements

Information about hay fever

Presence of hay fever, Age of onset, Worsening period, Atopic dermatitis

Presence of hay fever, Age of onset, Worsening period, Relationship with yellow sand and PM2.5, Departments to be treated, Drugs purchased at pharmacies and reasons for purchase, Allergy blood collection and its positive items, Atopic dermatitis, Urticaria, Bronchial asthma, Food allergy, Drug allergy, Family history, Impact on income, Cost of hay fever treatment

Preventative actions for hay fever

Mask, Eye drops, Nose drops, Oral medication, Air purifiers, Glasses/Goggles, Other

Today's preventative actions against hay fever

Mask, Eye drops, Nose drops, Oral medication, Air purifiers, Glasses/Goggles, Wash clothes and hair when you get home, Gargle and wash your face when you get home, Moisturizer/skin care, Close windows, Hang your laundry indoors, Vaccine rice for pollen allergy, Supplements, Other

Preventative behaviors of interest

Duration of preventative actions against hay fever

Today’s preventative actions against hay fever

Nasal symptom score

Runny nose, Nasal congestion, Itchy nose, Sneezing, Difficulty in daily life owing to hay fever

Runny nose, Nasal congestion, Itchy nose, Sneezing, Difficulty in daily life owing to hay fever, Number of sneezing attacks per day, Number of times you blow your nose per day

Non-nasal symptom score

Itchy eyes, Running tears, Redness of eyes, Itchy ears and mouth

Itchy eyes, Running tears, Redness of eyes, Itchy ears and mouth, Itchy skin, Abdominal pain, Headache/head heaviness, Cough, Insomnia/drowsiness, Irritability, Sluggishness, Stuffy ears

Hay fever treatment

How to apply eye drops

Oral medication, Eye drops, Nasal drops, Pastes, Injections, Laser incineration of nasal mucosa, Sublingual immunotherapy, Others

How to apply eye drops

Today’s treatment for hay fever

Dry eye

Japanese version of Ocular Surface Disease Index

Japanese version of Ocular Surface Disease Index

How often do your eyes feel dry?

How often do your eyes feel irritated?

Quality of life

(-)

Japanese Allergic Conjunctival Disease Quality-of-Life Questionnaire (17 questions)

Work productivity

Japanese version of Work Productivity and Activity Impairment-Allergy Specific

Japanese version of Work Productivity and Activity Impairment-Allergy Specific

Automatic acquisition

Location, Number of steps, Temperature, Humidity, PM2.5, Pollen count, Distance traveled, Moving speed, Weather

Location, Number of steps, Temperature, Humidity, PM2.5, Pollen count, Distance traveled, Moving speed, Weather

Others

Stress, Stool

Stress, Stool

  1. Underline indicates new questions, bold indicates additions or modifications to questions
  2. PPI, patient and public involvement; PM2.5, fine particulate matter