Table 5 STUDY DISSEMENINATION: Method of engagement and study activities by stakeholder type
Stakeholder | Method of engagement | Study activity | Specific examples |
|---|---|---|---|
Patients with asthma | |||
Patient/Stakeholder Advisory board (HIITBAC) | Patient education | On “World Asthma Day” hosted a town hall to disseminate preliminary study results, conducted a broad discussion of asthma, and delivered list of specific action to City Council on how to make Houston more lung health through interviews with local TV and radio stations (HIITBAC) | |
Caregivers of patients with asthma | |||
Parent advisory council (BEAMS) | Future research | Developed parent advisory council to enhance subsequent research and programmatic initiatives BEAMS Shared insights with other research teams considering similar engagement strategies to increase patient centered approaches | |
Advocacy organizations | |||
Multi-disciplinary stakeholder committees and meetings with the GNYHA (SAMBA) | Implementation | Created toolkit and implementation guide for organizations adopting and implementing self-management support program Guidance regarding implementation and sustainability of programs Increasing appeal of program implementation to other health care systems | |
Health care organizations | |||
Meetings with representatives from NYS and city DOH Representatives from FQHC | Implementation Implementation | Connected research team to health plans, hospitals, academic institutions, professional organizations, community coalitions (SAMBA) Ensured sustainability of intervention by providing ongoing training and support, institutionalizing asthma care plan (asthma education by CHWs), and implementing a quality assurance monitoring system (Respira Sano) | |
Community members | |||
Community health workers Multidisciplinary stakeholder group (SAMBA) | Implementation Contextualization of results | Participated in statewide assessment of asthma home visiting programs in partnership with California Department of Public Health (Respira Sano) Redeveloped messaging frames for various local and national audiences Served as community spokespersons to share the study, findings, and broader implications for underrepresented persons with asthma | |
Clinicians | |||
National advisory core group (BEAMS) | Contextualization of results | Helped contextualize the study and inform members of the target community about the degree to which study was shaped by patients to hopefully increase acceptance of study findings | |