Table 2 Views on community participation in future health research

Key Question 3: How can research be organised to better facilitate and encourage community participation?

1

Education regarding research

Education regarding research

2

Good communication among community members and researchers

Simple and understandable language to be used

3

Communication through existing community structures

The benefit and importance of the research to be clearly explained

4

Community meeting before the research

Updates on previous research

5

Updates on previous research

Involvement in planning stages

6

Community and government organisation involvement

Appointment of community leaders to inform and educate the community on research

7

Motivation to be given to the elderly e.g. time compensation

Privacy and confidentiality must be maintained

8

Simple and understandable language to be used

Clear documented consent

9

Transparency regarding ethics etc

Good communication among community members and researchers

10

The benefit and importance of the research to be clearly explained

Communication through existing community structures

Key Question 4: How much involvement would the community like to have in the planning, conduct and dissemination of research findings?

1

Timely dissemination of findings and associated explanation/ counselling

Involvement in planning stages

2

Involvement in planning stages

Community attendance and acceptance of findings at dissemination of results

3

Informing the community of plans to conduct research early on

Community cooperation as participants

4

Community cooperation as participants

Timely dissemination of findings and associated explanation/ counselling

5

Community acceptance of intervention

Education in importance of giving proper and true research answers

6

Involvement in implementation of interventions

7

Conduct of research