Table 2 Interview Structure*
Section | Topic explored |
|---|---|
Involvement models and involvement guides | Principles of collaboration with patients in research programs |
Models of patient involvement in funded programs | |
Funding of patient organizations during application phase (pre-application grant) | |
Checklist on involvement of patient organizations and patient advocates during the application phase | |
Matchmaking between applicants and patient advocates: How to reach out & identify suitable partners | Suggested match-making process between applicant and patient community |
Matchmaking platform | |
Patient involvement in CALL TOPIC definition, scope and implementation of call for proposals | Process for co-creating request for proposals to ensure patient-centric funding strategy and patient relevance of calls |
Defined measures to avoid conflict of interest of patient expert advisors | |
Assessment criteria for patient engagement in project proposals | How to rate / evaluate proposed patient participation in projects |
Good practices, metrics and scoring system to assess those criteria | |
Patient experts as grant reviewers in evaluation process of applications | Handbook for patient advocates to engage in funding reviews |
Guidance for funders on developing pool of patient experts as reviewers | |
Training strategy for patient expert reviewers | |
Compensation of patient expert reviewers |