Participants | To be eligible for inclusion in this review, studies must describe:· Adults (18+)· Lived experience (current or past) that is the subject of the individuals involvement in the research (i.e., homelessness, substance use disorder, incarceration, sex workers [12]· Involvement of individuals with lived experience is in an ‘informing the research’ capacity (e.g., advisory group/co-research), not a participant capacity· OR researchers reflections on involving people with lived experience in their work |
Types of studies | · Original, peer-reviewed articles · Non-peer reviewed papers e.g., dissertations, grey literature, other non-peer reviewed guides · Papers conducted using any qualitative methodology |
Outcomes | Any formal or informal exploration of best-practice methods, guidance, recommendations, barriers, or facilitators for involving individuals with lived experience in palliative and EOL research. This can be from the perspective of researchers, or lived experience (LE) contributors |
Publication characteristics | · English language · 10 years (i.e., January 2012–August 2022) |