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Table 4 Themes within thematic synthesis and the perspectives that were pertinent to each theme

From: Opportunities and challenges in involving people with lived experience of inclusion health as co-researchers in palliative and end of life research: a rapid review and thematic synthesis

Theme

Sub-theme

Perspective included

Challenges & Barriers

How lived experience impacts positionality: bias and scepticism

Lived experience co-researchers

Protection vs. patronisation

Academic researchers

Overcoming stigma and reluctance to share power

Academic researchers

Emotional burden of research

Both

Facilitating appropriate reimbursement

Both

Successes & Benefits

Relatability of lived experience co-researchers

Lived experience co-researchers

Advanced level of insight

Academic researchers

Two-way learning opportunity

Both

Advice & Guidance

Promoting equal relationships

Academic researchers

Continued support

Both

Allocation of sufficient funding

Academic researchers

Tailored, accessible training

Both