Table 1 Research activities contributed by YER partners in this project
From: Youth engagement in research: exploring training needs of youth with neurodevelopmental disabilities
Research Stage | Examples of activities with YER partners |
|---|---|
Preparation | Developed the idea and concept for the study Informed the study protocol (research questions and methods) Shaped interview questions so that they were framed appropriately for youth with NDD (e.g., plain language) Planned the virtual symposium, such as the breakout room questions and activities Recorded themselves for the recruitment videos Provided feedback on ethics and grant application that was incorporated into final drafts |
Execution | Recruited participants by sharing the recruitment poster and videos on social media and word-of-mouth Conducted interviews Co-hosted and facilitated the two-day virtual symposium Conducted qualitative data analysis collaboratively by coding and engaging in group discussions |
Knowledge Translation | Provided feedback on abstracts, manuscript, and posters Co-developed the prototype of training materials (e.g., video and infographic) Identified opportunities and co-presented findings at research conferences (CP-NET Science and Family Day, 2021, Children’s Healthcare Canada Annual Conference, 2021) |