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Table 1 Examples of what involvement can look like

From: Participatory development of a framework to actively involve people living with dementia and those from their social network, and healthcare professionals in conducting a systematic review: the DECIDE-SR protocol

Degree of involvement

Example

Receiving information only

Presenting the written protocol, no active involvement besides receiving the information

Actively contributing

Discussing the written parts of the protocol, and asking for your feedback, no active involvement in the decision how to response to the provided feedback from all members of the research team

Actively influencing content

Writing together with a researcher, therefore actively involved during the writing process

Actively controlling content

Writing on your own a preferred section of the protocol and therefore defining content of the protocol

Actively leading the writing process

Acting as first or last author of the protocol