Research involvement and engagement of adolescent and young adults in a cancer trajectory: a 5-year experience from a patient support facility at a university hospital

Table 1 Patient-involving research projects at a supportive facility for adolescents and young adults with cancer during a 5-year period, 2016–2021

Topics	Topic raised by	Topic discussed and problem confirmed by patient-panel	Type of study	Publications
App development	Users	x	Cocreation	[24, 28]
Patient-involvement	Researchers	(x)	Qualitative studies	[21, 25, 26, 28]
Quality of life	Researchers	x	Observational study	[36]
Covid19	Researchers	–	Qualitative study	[20]
Living alone	Researchers	x	Qualitative study	Study in progress
Cognitive challenges	Users	x	Observational study	[37]
Fertility	Users	x	Register study Qualitative study	[17]
Monitoring	Researchers	x	Observational study	[34]

– = not discussed due to Covid19, (x) = discussed as secondary endpoints of other projects e.g., the app development

ISSN: 2056-7529