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Table 1 CHICO: The CHecklist for Inclusive COmmunity involvement in health research

From: Inclusive approaches to involvement of community groups in health research: the co-produced CHICO guidance

What the groups say

What this means for researchers

Step 1: relationships

Group interest

Work with community leaders to gauge interest/relevance of topics before meeting

Understand our community

Work with community leaders to understand the needs of the group before meeting

Work with us in a way that suits us

Be flexible and informal and follow the lead of the community leader / group on format

Bear in mind that a format that works for one group may not work for another

Build trust and relationships / get to know each other

Is there a key person who can work with the group?

Take time to build relationships

Come back and see us

Have you factored in regular meetings to maintain the relationship with the group?

Have you considered additional visits when you have no need for input?

Keep us in the loop

Have you planned to update the group on progress and outcomes of research?

Show the group how they’ve made a difference

Step 2: reciprocal relationship

Say thank you/our time is valuable

How can you say thank you?

Agree with community leaders the best way to give back to the group

Give us the information we need/want

Have you considered ways to give added value?

For example, organise visits from doctors/experts to discuss health issues important to the group

We are the experts

Listen to and acknowledge expertise—they are the experts in their own experience of healthcare provision

Step 3: practicalities

Come to us

Are you meeting with the community groups at their usual time, day and location?

Use our language

Where applicable, have you asked groups which language(s) they would like the meeting to be conducted in, and how they would be most comfortable doing the translation?

Pay for community leader(s)/external translator

Help us get there

Have you considered transport needs and pay for means for people to the attend group?

‘Food is very important’

Are you providing/paying for culturally appropriate food

Consider using existing in-house or local providers

‘No fancy words’

Are you using plain language?

Be aware of jargon—use real life examples

Let us enjoy our time together

Have you built in time for social time/activities?

Ask the community leaders/group what they would like