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Table 1 Demographics

From: Co-creation of a patient engagement strategy in cancer research funding

 

Core strategy development team

Validation—key informants

Validation—survey

Validation—advisory council

Total N

6

8

166

13

Gender (man/woman/non-binary/two-spirit/prefer not to say+)

3/3/0/0/0

1/7/0/0/0

46/115/0/0/2

8/5/0/0/0

Cancer experience (patient/caregiver)

2/2

7/1

147/11

0/1

Researcher* (n)

2

2

3

13

Underserved community representation** (n)

Rural and remote (1), young adult (1)

Black (2), South Asian (1), East Asian (1), francophone (1), rural and remote (2), young adult (1)

Black and racialized groups (25), francophone (27), rural and remote (50), young adults (10)

East Asian (1)

  1. +The question on gender also included the option to self-describe. No respondents chose this option
  2. *Researcher denotes an individual that conducts research as part of their daily work or career
  3. **Young adult is defined as an individual who was diagnosed with cancer between ages 15 and 39
  4. Some survey respondents opted not to disclose gender or other identity information (demographic questions were optional)