Table 3 Proposed patient engagement activities in CCS research funding
From: Co-creation of a patient engagement strategy in cancer research funding
Critical activities | For example… |
|---|---|
Engage patients with diverse perspectives in co-creation and leadership roles, to shift decision-making to more equal representation | Support informed participation of patients on research advisory councils |
Include patients as review panel members, giving equal weight for different types of reviewer expertise | Expand and improve CCS’ Patient/Survivor/Caregiver Reviewer Program |
Integrate patient engagement into research competitions (review and funding) broadly | Co-develop funding opportunities with patients |
Have patients co-develop stories to share the significance of research work | Support patient leadership in telling their stories about working collaboratively with researchers |
Engage patients in communicating this strategy | Co-communicate the shift in culture and practice with patients |
Connect the needs of researchers with the skills and interests of patient partners | Create an ongoing program for patient-researcher matching, beginning with a pilot |
High priority activities | For example… |
|---|---|
Offer trauma-informed engagement resources and training | Collate and create (or use external) trauma-informed engagement training and resources for CCS staff and researchers |
Engage patients in the identification of research priorities for strategic investment | Consider piloting patient-researcher research prioritization or creating targeted funding opportunities to do so |
Design training for patients and researchers on patient engagement | Consider a workshop format for patients and researchers to collaborate and learn together about working together |
Important activities | For example… |
|---|---|
Establish an Award for Excellence focused on patient engagement | Focus on highlighting and promoting best practice exemplars, chosen by a team of patient reviewers |
Engage patients in supporting the life cycle of research—development and design through to dissemination of research projects | Require the incorporation of patient partners, patient and caregiver engagement throughout research proposals for CCS research funding |
Engage patients in review of research progress using updates | Update patients on grants that include patient partners or patient engagement |
Engage patients in co-creating manuscripts and contributing to authorship | Consider creating a policy for CCS funded projects to include patients as co-authors |