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Fig. 3 | Research Involvement and Engagement

Fig. 3

From: The value of co-creating a clinical outcome assessment strategy for clinical trial research: process and lessons learnt

Fig. 3

Patient roles in patient-reported outcomes development and scientific dissemination. The figure displays the levels of patient contribution to PRO instrument development iterations and scientific communications. In addition to these patient roles, interviewees in phase II acted as ‘patient discussants’: 60 people living with early-stage Parkinson’s were interviewed for cognitive debriefing activities on the preliminary PRO instrument item set and other PRO instruments. F2F face-to-face, PRO patient-reported outcome

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