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Table 1 Demographic details of children and young people who answered the survey

From: What matters to you? Engaging with children in the James Lind Alliance Children’s Cancer Priority Setting Partnership

Response

Children and young people with cancer (n = 61)

Siblings (n = 10)

Gender

Male

22 (36%)

5 (50%)

Female

38 (62%)

5 (50%)

Prefer not to answer

1 (2%)

0 (0%)

Age

3–6 years

13 (21%)

1 (10%)

7–9 years

17 (28%)

2 (20%)

10–12 years

9 (15%)

2 (20%)

13–15 years

16 (26%)

3 (30%)

16–21 years

5 (8%)

1 (10%)

Prefer not to answer

1 (2%)

1 (10%)

Country of residence

England

42 (69%)

6 (60%)

Scotland

9 (15%)

2 (20%)

Wales

6 (10%)

2 (20%)

Northern Ireland

1 (2%)

0 (0%)

Other

2 (3%)

0 (0%)

Prefer not to answer

1 (2%)

0 (0%)

Diagnosis

Leukaemia

26 (43%)

3 (30%)

Kidney tumour

7 (11%)

0 (0%)

Lymphoma

7 (11%)

1 (10%)

Brain/spinal tumour

5 (8%)

2 (20%)

Soft tissue sarcoma

4 (7%)

0 (0%)

Neuroblastoma

3 (5%)

2 (2%)

Retinoblastoma

2 (3%)

0 (0%)

Bone tumour

1 (2%)

0 (0%)

More than one cancer diagnosis

1 (2%)

0 (0%)

Other

2 (3%)

1 (10%)

Prefer not to answer

2 (3%)

0 (0%)

Do not know

1 (2%)

1 (10%)

Ethnic groupa (children and young people with cancer n = 36; siblings n = 7)

White

31 (86%)

7 (100%)

Asian or Asian British

1 (3%)

0 (0%)

Black African, Black Caribbean or Black British

1 (3%)

0 (0%)

Mixed/multiple ethnic groups

1 (3%)

0 (0%)

Prefer not to answer

2 (6%)

0 (0%)

Current situationa (children and young people with cancer n = 36; siblings n = 7)

On treatment

12 (33%)

3 (43%)

Finished treatment

23 (64%)

4 (57%)

Other

1 (3%)

0 (0%)

  1. aNot asked in 4–7 year olds survey