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Table 4 Children’s Top 5 and questions for the final workshop

From: What matters to you? Engaging with children in the James Lind Alliance Children’s Cancer Priority Setting Partnership

Rank

Top 5 questions from the children’s workshop

Question for the final workshop from the shortlisting survey

1

How can we make being in hospital a better experience for children and young people? (like having better food, internet, toys, and open visiting so other family members can be more involved in the child’s care)

 

2

How can we prevent cancer in children and young people?

Why do children develop cancer (including the role that genetics plays) and could it be prevented?

3

How can we make more accessible treatments that are closer to home, in shared care hospitals?

 

4

How can we speed up the process of getting diagnosed and starting treatment in the right place?

How can time to diagnosis be improved for children with suspected cancer?

5

What are the best ways to help children and young people with their worries and make them feel happier?

What are the best ways to provide emotional support for children and their families (1) around the time of diagnosis, (2) during treatment and (3) after treatment (including survivors who are now adults)?