Table 2 Demographics of the participants in the three study phases
Study phases | Phase 1 Translation process | Phase 2 Evaluation | Phase 3 Focus groups |
|---|---|---|---|
Numbers (n) | 7 | 15 | 9 |
Age, mean years (range) | 56 (34–77) | 60 (40–77) | 61 (42–75) |
N (Percent) | N (Percent) | N (Percent) | |
Gender | |||
Women | 4 (57) | 12 (80) | 6 (67) |
Men | 3 (43) | 3 (20) | 3 (33) |
Participants in the advisory boards | |||
Patient | 6 (86) | 12 (80) | 9 (100) |
Caregiver | 1 (14) | 3 (20) | 0 |
The primary site of cancer | N/A | ||
Brain | 6 (40) | 3 (33) | |
Breast | 4 (27) | 3 (33) | |
Gynecological | 5 (33) | 3 (33) | |
Highest completed education | |||
Basic school | 3 (20) | 2 (22) | |
High school or short-cycle tertiary | 6 (86) | 8 (53) | 5 (55) |
Higher education | 1 (14) | 4 (27) | 2 (22) |
Employment status | |||
Working (full or part-time) | 1 (14) | 7 (47) | 4 (44) |
Not working | 6 (86) | 8 (53) | 5 (66) |
Relationship status | N/A | ||
Married/living together | 13 (87) | 8 (89) | |
Single | 2 (13) | 1 (11) | |
Years of involvement in the advisory board | N/A | ||
< 6 months | 1 (7) | ||
6 months to 1 year | 11 (73) | 8 (89) | |
1 year to 1.5 year | 2 (13) | 1 (11) | |
1.5 to 2 years | 1 (7) | ||
Participation in the advisory board (number of meetings) | N/A | ||
1 to 3 meetings | 5 (33) | 3 (33) | |
3 to 6 meetings | 8 (53) | 4 (44) | |
6 to10 meetings | 2 (13) | 2 (22) | |