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Table 1 Stakeholder groups per year

From: Lessons learned in measuring patient engagement in a Canada-wide childhood disability network

Stakeholder group

Year 1

2018

Year 2

2019

Year 3

2020

n (%)

n (%)

n (%)

Researchers/investigators

99 (36.4)

101 (33.1)

111 (25.5)

Research staff

42 (15.4)

48 (15.7)

80 (18.3)

Committee members

44 (16.2)

41 (13.4)

54 (12.4)

Patient-partners (parents/caregivers)

44 (16.2)

60 (19.7)

87 (20.0)

Youth advisors

2 (0.7)

2 (0.7)

10 (2.3)

Trainees

16 (5.9)

26 (8.5)

49 (11.2)

Education/health professionals

9 (3.3)

8 (2.6)

20 (4.6)

Support services/consultants

14 (5.1)

15 (4.9)

14 (3.2)

Policy makers

2 (0.7)

4 (1.3)

8 (1.8)

Industry partners

3 (0.7)

Total n (%)

272 (100)

305 (100)

436 (100)

  1. The numbers indicate the primary stakeholder group to which each member belongs. For instance, a policy maker (primarily) who also serves as a researcher would not be included in the Total count for “Researchers.” The numbers for committee members exclude patient-partners and youth-advisors