Lessons learned in measuring patient engagement in a Canada-wide childhood disability network

Table 3 Stakeholder involvement and appraisal of the partnership

CBPR item of interest	Year 1 2018 N = 83	Year 2 2019 N = 78	Year 3 2020 N = 48
Involvement in the research process^a
Defining the problem	49	51	56
Deciding on which issue to research	33	45	52
Developing research questions	41	53	58
Creating research instruments or guidelines	55	57	66
Collecting data	65	63	63
Analyzing and/or interpreting the data	36	51	48
Disseminating and sharing findings	40	53	64
Appraisal of the Partnership^b
When the different partners come together, I feel comfortable sharing my opinion	74	91	92
This project is not a true partnership	6	14	6
So far, the work of the partnership has been good for the community	68	83	85
So far the partnership has been good to me personally	67	78	77
I am satisfied with my level of involvement in this project	83	83	81
It is important to me to have my name on presentations and articles	48	60	50
It is important to me to have my work acknowledged on presentations and articles	48	57	51
What type of trust do you think you have now in this partnership?^c	51	47	65

The data reported in this table represent different samples per year
^aPercentage of respondents who answered: Somewhat Involved/Involved/Very involved
^bPercentage of respondents who answered: Somewhat/Strongly agree
^cPercentage noting critical reflective trust. Responses are for stakeholders who indicated one of the stakeholder types that were not research/research teams and who indicated another stakeholder type

ISSN: 2056-7529