Lessons learned in measuring patient engagement in a Canada-wide childhood disability network

Table 4 Researchers/principal investigator appraisal of stakeholder involvement and partnership trust

CBPR Items	Year 1 2018 N = 23	Year 2 2019 N = 11	Year 3 2020 N = 12
Involvement in the research Process^a
Defining the problem	100	100	92
Deciding on which issue to research	96	100	92
Developing research questions	96	100	92
Creating research instruments or guidelines	82	91	92
Collecting data	67	100	83
Analyzing and/or interpreting the data	38	50	50
Disseminating and sharing findings	33	44	75
Appraisal of the Partnership^b
When the different partners come together, I feel that stakeholders are comfortable in sharing their opinion	96	100	100
This project is not a true partnership	9	10	0
So far, the work of the partnership has been good for the community^b	78	91	75
So far the partnership has been good to me personally	91	91	92
I am satisfied with my level of supervision in this project^b	91	73	100
It is important to me to have stakeholders’ names on presentations and articles	70	91	83
It is important to me to have stakeholders’ work acknowledged on presentations and articles	96	100	92
What type of trust do you think you have now in this partnership?^c	48	36	75

The data reported in this table represent different samples per year
^aPercentage of respondents who answered: Somewhat Involved/Involved/Very involved
^bPercentage to respondents who answered: Somewhat/Strongly agree
^cPercentage of respondents who indicated having critical reflective trust in the partnership

ISSN: 2056-7529